Lets get CDH on the Oprah Show.

[Cristin Russell]

I submitted Graham's story when he was an infant... thought the name 'Graham' might get someone's attention... I never heard anything... I'll try again though!!

[Dawn Torrence Ireland]

Oprah, local news, national news, locals papers, magazines.... please, any free time you have that you can write to anyone - please do! The more media attention to CDH, the better.

[Dawn Torrence Ireland]

A mom told me that the Today show had a interview this morning with a group called that Now I Lay Me Down To Sleep, which are photographers who take photos of cherubs for families at the hospital. Awesome organization, wish I would've seen the show today! I'll look at the video on-line later.

Here is their contact info:

Today Show
30 Rockefeller Plaza
New York, NY 10112

today@nbcuni.com

Ok, let's add them to the list!!!!

[Cristin Russell]

I saw the Today Show piece.... and cried my eyes out...

[Dawn Torrence Ireland]

I got a response from my e-mail to the Today show and they sent a phone number that they give out to anyone who e-mails a story. (212) 664-4249 - please call this number everyone - at least one of us will get through if we all call!

[BeverlyCawvey]

oh..... what about the morning show
with mike and juliet
http://mandjshow.com/

they are always doing great shows and topics!

[Dawn Torrence Ireland]

Great idea, Beverly!

[Kristin Morrow]

Dawn,

I just emailed the Today show using the email you posted. Now I have never emailed them before.. I had always snail mailed the letters because I didn't have an email address for them. Am I supposed to call them after I email them? I'm confused as to what the number is for?

[StephanieOlivarez]

I was on the phone with the number you gave Dawn and I got an answer...she transferred me and than some women came on the phone and "said please hold..." phone was disconnected!!!
Will try again Monday.

[Dawn Torrence Ireland]

If you e-mail them, they send you a phone number to call to talk to someone about your story. You can skip the e-mail and just call.

Tell your stories and remember to point out that over 2000 babies are born with CDH every year and half of them do not survive and there is little media and research for CDH. That CDH occurs as often as Spina Bifida and Cystic Fribrosis. That we're a group of over 2200 families and we're asking for their help to bring awareness to this disease. Awareness = Research. If you throw numbers at them it will make them listen a bit more. Especially shocking statistics. How many people died in 9/11? (Not belittling that at all!) - isn't that roughly the same number of babies that are born with CDH every year? Every year! And we have no media attention to help these babies.