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Thread: Lets get CDH on the Oprah Show.

  1. #81
    I did too.
    Nothing long: cherubs, Grace , CDH....right to the point

  2. #82
    I received this back from Readers Digest.
    Dear Stephanie,
    Thank you for sharing your submission with us.
    We'll be in touch if we decide to publish your contribution.
    Sincerely,
    The RD.com Editors
    1 Reader's Digest Road
    Pleasantville, NY 10507
    http://www.rd.com/

    I did my letter the same, CHERUBS, Shelby, CDH.

    Ok, more need to get on this to Readers Digest. More people writting- the more they will know how we want to spread CDH awareness.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  3. #83
    Senior Member karahess's Avatar
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    I'm glad to see people diving into the Readers Digest route. I'm addicted to that magazine. I had kind of given up hope on them as they have a thing in their magazine in tiny, tiny print that says not to send in articles to them.
    Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.

  4. #84
    Ha!I got the same thing!!
    That's probably what they send out to acknowledge they rec'd it.
    Let's just hope they read it

  5. #85

    Writing to Reader's Digest

    Thanks to everyone that has written. They say not to send articles in the magazine but on the web site they do let you submit stories with the caveat that they usually only print there staff writers. It's not readily available, you have to search for the page. That's why I said right away that I was not a writer and was only submitting for them to consider one of there writers write about CDH. I also gave them 2 points of view for the story. We'll see.

    Alyx

  6. #86
    Senior Member karahess's Avatar
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    Ah ha! Good job digging around and finding out that little secret, Alyx. Lord willing, CDH will strike a cord with one of their writers.
    Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.

  7. #87
    Great jobs, everyone! I've been working on some articles from a couple different perspectives too. Shane's story, CHERUBS story, running an on-line non-profit and one on the drama stuff going on (non-personal, abstract on the pitfalls of running an organization while dealing with the occasional issues). I figure any story we can get published that will allow us to type the words "Congenital Diaphragmatic Hernia" in the media is great. So please look at your stories from all different sides - how it affected your family, living in a different city while in the hospital, single parents, through the eyes of your other children, etc.

    And contact a local reporter who wants to expand his/her career. I'm very fortunate to live in a area with a lot of writers, several very well known. I also have known the editor of one of the local papers for 20 years (I used to babysit her boys when we both lived in VA and we ran into each other again when she interviewed me about CHERUBS.... God certainly had a hand in that!). I'm going to send these stories into them, hoping that at least 1 will want to help me finally write that book about my story or one will have connections to the Associated Press.

    I also am contacting all the local media (tv, radio, newspapers) about the Angel Ball and Golf Tournament. Those of you that are planning to attend - use that as a story too! How you are raising funds to attend or how your family is meeting other CDH families. After the events, write articles about how it was to meet other families.

    There is always a story in everything... but in our cases, we each have about 100 stories. The trick isn't to try to fit it all in one article, but to focus on one thing, one event, one moment... and take the readers there with you.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  8. #88
    I emailed Oprah last night. Hopefully, the more people that do email her the more they will see just how common CDH really is in our world.
    This is all still very new to me. It has taken me so long to get to this point. Thank you to all you for listening to me.
    Jode and Mike Wells we miss our Judy Keona every day. Get your free <a>online pregnancy calendar</a> from <a>WhatToExpect.com</a><br><img>

  9. #89
    AND you still have to write something for Victoria on YouTube!!!!

  10. #90
    how about using what's in the PRG?
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

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