Link: http://www.ncbi.nlm.nih.gov/pubmed/26642385

Eur J Pediatr Surg. 2015 Dec;25(6):488-96. doi: 10.1055/s-0035-1569151. Epub 2015 Dec 7.
The Congenital Diaphragmatic Hernia Study Group Registry.
Morini F1, Lally PA2, Lally KP2, Bagolan P1.
Author information

Abstract
Congenital diaphragmatic hernia (CDH) is a rare anomaly with an incidence between 1/2,500 and 1/3,000 live births. The rarity of the disease makes it difficult to design powerful studies leading to accurate and meaningful evidence. For rare diseases, the development of multicenter international registries may help in collecting data and give an overall picture of the disease. In this review, we will describe the development of the CDH study group, we will describe its work methodology, and the results obtained since its birth in 1995.
Georg Thieme Verlag KG Stuttgart ยท New York.
PMID: 26642385 [PubMed - in process]