Carrie Williams

We had a checkup with ultrasound on 9-24-12. I was a little over 33 weeks. Scan went well. Baby weighs 4.13 lb. fluid level is good and all of our vitals are good. Also baby's head is down. Doc took a close look at the brain. Last scan she was concerned with some fluid at base. This time she was not as concerned. She said all vents were closed except one and brain looked good. She said that a lot of others may be born with this opening and we just don't know because not all babies get scanned this ...

We met with a few doctors at Cleveland University Hospital. First was the ob/gyn then neonatologist and last was a surgeon. They all were very nice and knowledgeable. I had an ultrasound and they see TWO LUNGS!! They say our baby has 20-30% of it's diaphragm missing. Bowels in chest, liver and stomach are still down. They say our baby is a 'moderate' case. Baby is growing and moving a lot, which is great. We have decided to continue care with them. At some point I will move to the Ronald ...

We have a meeting with the docs at Cleveland's University Hospitals (Rainbow babies and children) on Aug. 28, 2012. I am looking for other CDH families who have experience with this hospital.

Tags: cleveland, ohio, rainbow babies

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I am 35, married 8 years. We are expecting our first child 11-10-12. Our baby was diagnosed with CDH at 22.5 weeks.

They think the intestines are in chest but stomach and liver are down. Heart is pushed to right side but formed and functioning. Baby also has clubbed feet.

We have been referred to University Hospitals in Cleveland, Ohio.