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CHERUBS

Welcome to the CHERUBS.

  1. CDH Awareness & Events Threads / Posts  Last Post

    April 19 International Congenital Diaphragmatic Hernia Day of Awareness, Parades of Cherubs, Save the Cherubs Campaign, Fundraisers and more!

    1. Updates on our organization, CHERUBS! Research, web site, newsletters, media, finances, legal, etc. If it's new, you'll find it here!

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      • Threads: 225
      • Posts: 1,985
    2. Meet experts in Congenital Diaphragmatic Hernia Research and Care and ask questions of our monthly guests.

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      • Threads: 3
      • Posts: 89
    3. Yes, YOU can make a difference in the fight against CDH! Creative ways to volunteer, info on where donations are needed most, our Angels for CHERUBS Program and much more!

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      • Threads: 378
      • Posts: 4,732
    4. CHERUBS 2010 National Congenital Diaphragmatic Hernia Awareness Campaign. http://www.savethecherubs.org

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      • Threads: 35
      • Posts: 80
    5. Polls, helping us with printed materials, donation lists, new siblings, etc

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      • Threads: 34
      • Posts: 273
    6. CHERUBS Congressional Bills for National Congenital Diaphragmatic Hernia Research and Congenital Diaphragmatic Hernia Awareness Protection. http://www.cdhbills.org

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      • Threads: 7
      • Posts: 47
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      • Threads: 22
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  2. CDH Support Threads / Posts  Last Post

    Meet other CDH families, offer prayers / kind thoughts, local get-togethers and more!

    1. Stories of surviving CDH patients already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs" ***Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.***

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      • Threads: 220
      • Posts: 391
    2. Stories of CDH patients lost that are already printed in our newsletter, "The Silver Lining" and our book, "Stories of Cherubs". ***Please do not post your stories here (we'll post them for you after they are published) but please feel free to add updates to your stories or comment on other stories by using the Reply button on story post.***

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      • Threads: 121
      • Posts: 172
    3. Help CHERUBS to help CDH families by Adopting a Hospital in honor / memory of your cherub

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      • Threads: 5
      • Posts: 108
    4. Meet Other Local CDH Families

      CHERUBS has members in 53 countries. Meet other CDH families in your country, your State Representative and Hospital Angels.

    5. Forum for those who have lost their cherubs

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      • Threads: 201
      • Posts: 2,961
    6. Meet the families of other surviving cherubs

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      • Threads: 368
      • Posts: 5,956
    7. Forum for parents Expecting CDH babies

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      • Threads: 454
      • Posts: 9,880
    8. EVERYONE please introduce yourself & meet other parents here! This forum is now used to replace our old Main Listserv.

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      • Threads: 398
      • Posts: 5,563
    9. Prayer and well-wishes requests for CDH patients having trouble, family and friends and all other prayer requests

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      • Threads: 395
      • Posts: 9,810
    10. Help families of babies affected by CDH by helping CHERUBS provide information and support items through our totebag project

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      • Threads: 65
      • Posts: 361
    11. This a PUBLIC forum to post prayer requests. We also have a private one available.

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      • Threads: 83
      • Posts: 1,181
    12. Web site updates, issues, additions and general web site news.

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      • Threads: 63
      • Posts: 625
    13. Public postings of our conferences and events. There is also a private members-only section to discuss details, travel arrangements, etc.

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      • Threads: 60
      • Posts: 354
    14. National & International Member Conferences as well as State and Local Get-Togethers

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      • Threads: 87
      • Posts: 2,550
    15. A judgement-free place for those that chose to terminate a CDH pregnancy

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      • Threads: 37
      • Posts: 610
    16. A place for dad's to talk about CDH or sports or whatever they want.

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      • Threads: 8
      • Posts: 48
    17. Grandparents have a double-dose of worry to deal with; worrying and sometimes grieving their cherubs and worrying and want to make it all ok for their children who are the parents of their cherubs. Here they can support each other and offer advice and info.

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      • Threads: 9
      • Posts: 134
    18. A place for survivors 18 - 100 to discuss post-puberty issues, having children of their own, pregnancy as a CDH survivor and other issues.

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      • Threads: 23
      • Posts: 435
    19. Place for kids 10 and over to talk to other cherubs and siblings.

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      • Threads: 6
      • Posts: 121
    20. Having children after having a child with CDH

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      • Threads: 110
      • Posts: 3,722
    21. Trying to have another baby after dealing with CDH (survivors & non-survivors)

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      • Threads: 27
      • Posts: 388
    22. Having and/or losing a very sick child can wreck havoc on even the strongest relationships. Here you can talk without judgement and hopefully gain some info and support to help .

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      • Threads: 19
      • Posts: 329
    23. Inspirational stories, quotes and poetry. Please reference authors!

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      • Threads: 33
      • Posts: 197
    24. For discussions other than CDH. Laugh about your kids antics, cry about losing a loved one, vent about your boss... just respect the site rules and you can write about anything here.

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      • Threads: 497
      • Posts: 9,955
    25. Want to praise your state rep or find out who to thank for that holiday card? Want to see what positions need to be filled? Here is the info! :)

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      • Threads: 31
      • Posts: 550
  3. More Medical Info & Support Threads / Posts  Last Post

    Feeding issues, oxygen dependency, developmental delays, reflux, pulmonary hypertension and other medical issues that some cherubs have.

    1. For families of cherubs who had in utero repair, tracheal ligation or other in utero procedures

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      • Threads: 3
      • Posts: 503
    2. Dealing with CDH and Extracorporeal Membrane Oxygenation machines.

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      • Threads: 24
      • Posts: 392
    3. Dealing with oral aversions, NG-tubes, G-tubes, Mic-Key buttons, feeding therapies, etc

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      • Threads: 102
      • Posts: 1,676
    4. Dealing with developmental delay, cerebral palsy or other cranial, cerebral or behavioral issues

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      • Threads: 39
      • Posts: 466
    5. Dealing with pulmonary hypertension, asthma, lung function tests, vent or oxygen dependency, and other lung issues.

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      • Threads: 30
      • Posts: 301
    6. Dealing with CDH and syndromes or chromosomal abnormalities

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      • Threads: 11
      • Posts: 68
    7. CDH within mulitples - twins, triplets, quintuplets, etc

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      • Threads: 5
      • Posts: 42
    8. Dealing with chest pectus, scoliosis, allergies or any other medical issue

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      • Threads: 124
      • Posts: 1,581
    9. Growing up after having CDH is still an uncharted territory. Here you can talk to other parents about dealing with puberty, playing sports, having children of their own and much more.

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      • Threads: 26
      • Posts: 528
    10. Families dealing with more than 1 CDH baby (2% odds)

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      • Threads: 6
      • Posts: 48
    11. Parent opinions on hospitals / doctors / nurses and other medical care providers.

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      • Threads: 23
      • Posts: 110
    12. Medical conferences, grieving parent conferences, etc

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      • Threads: 1
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  4. CDH Research Threads / Posts  Last Post

    1. Research Studies actively recruiting CDH patients / families

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      • Threads: 21
      • Posts: 169
    2. CHERUBS CDH Research Survey, collaborations on CDH Research with other organizations and other information.

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      • Threads: 9
      • Posts: 42
    3. Research papers, articles, and more - also see Research Links!

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      • Threads: 22
      • Posts: 75
  5. CHERUBS Volunteers Threads / Posts  Last Post

    1. Permissions only forums for volunteers

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      • Threads: 1
      • Posts: 21
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    3. Learn how to volunteer at our charity to help families affected by CDH

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