Blog Comments

Good luck! My little girl was born in April with LCDH, heart pushed in to her right chest, one side enlarged, bowel up in her chest, as well as a growth restriction and short limbs. We were diagnosed at 28 weeks, though we knew there was something wrong at the 20 week appointment, we were just misdiagnosed at first. I am happy to report my little one had her repair surgery at less than 48 hours old, and we were discharged from the hospital when she was exactly 21 days old. We came home with oxygen only during feeds, and a relux med. She is now 7 months, old and off all oxygen and meds! She is the happiest baby! There is a lot of research out there and a lot of great stories. My baby was treated at Boston Children's. Good luck!