Ethan's appointment with surgeon
by
, 03-03-2012 at 02:54 PM (4528 Views)
Ethan is sitting here trying to sing "Twinkle Twinkle Little Star". He had a fantastic appointment with his surgeon yesterday (Friday 3/2). His right lung has pretty much filled in his right chest. His diaphragm was still a little up but so much better than last year. A big bulge that was concerning was gone. Praise the Lord that his lung is growing. His surgeon explained to a resident that he had the worst Right CDH and that he was wasn't eligible for ECMO because of his size at 4 lbs 2 oz. That he is a miracle. She was very surprised at his size and although she knew, she asked again how old he was. Then commented on how tall he is. Yay Ethan. She said her main focus now is for him to learn to eat. She noticed some prematurity issues still lingering (speech) but nothing time won't cure. He still has some weakness after all he has been through but with therapy and his own active lifestyle, he should be able to work through that. His reflux is improving. He is going May 3rd to have his eye surgery to correct the strabismus. Loving all this good news and pushing ahead with therapy.