Introducing myself
by
, 03-31-2010 at 09:02 PM (2057 Views)
Hello everyone! My name is Danielle Mason. I am a mom of a now heavenly angel. Her name is Isabelle May Mason. She was born on Nov. 29, 2007 and died Nov. 29, 2007. She was 2 and 1/2 hours old. She was diagnosed with CDH at 20 weeks. She had no other problems at all. Her heart was on the right side of her chest and had virtually no lungs. Yet she still managed to breath basically on her own for all that time. I also have 3 other children. None of which had CDH. My oldest is 7 his name is Cody. My second is Cayden and he is 5. My youngest child is Abbigail and she is 11 months. We had her after Isabelle passed. I joined this group after being a member of Breath of Hope. They were good support while I was pregnant but I soon had some disagreements with what they were doing so I removed myself from that group. The only thing I carry with me from them them is; I still register March 31 as CDH awareness day and I use tourqois ribbons to represent CDH. I wanted to join a group that could help me do fundraisers for CDH and help others become aware of it. I feel it is very important to inform others of this. One day I hope the awareness of CDH is as large as Breast Cancer. Of all the groups I looked at this was the only one that supported Living and non living babies of CDH and that was important to me. If you have any questions for me I will try to answer them the best I can. Thank you all for your time and God Bless our CDH babies!
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