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  1. another rollercoaster day of emotions ( like i haven't had enough )

    So we have a beautiful little 4 year old boy and who to this day has just been perfect besides all the little things that happen to kids. Last night while on here reading all the other parents' stories, i came across a mom who had a son who was 5 and presented with late presentation cdh. After that i got into the forum where so many people are dealing with having another child with cdh. My son for the past 2 months seems to have been sicker than normal, first with strep, then right when we lost ...
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  2. Having a rough day..

    Today has been very hard for me. I went to charleston this past tuesday and wenesday and met with all the doctors and everyone that will be taking care of me and my precious Jacoby. im not to sure why today it has bothered me so much but out of no where i begin to cry. It breaks my heart. But i know God made me the way I am because he knew i was going to have a baby with CDH. I know im not suppose to know the reason he gave him this horrible thing but i know he will take care of it. I got to see ...
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  3. Sienna Marie Howard 12/15/2011

    Quote Originally Posted by Danielle Howard View Post
    Sienna was my second child, she had a left sided hernia with stomach and part of the liver up in her chest cavity that was able to be seen on an ultrasound at 20 weeks. This is our story, one in which i hope helps others as other's stories on here has helped me realize that i am not alone.

    We found out we were pregnant in August, I'm very sensitive and one that just has to look at my husband to get pregnant so we knew right away. I was dealing with kidney stones a week prior to getting
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