Stay Connected
everything is still going good.... my baby girl=] still has pulmonary hypertension... but has been put on medication to control and so far has done good on it. she has been weined to 56% O2=] she started at 100%. Surgery got moved to manday the 9th, because she was started on a new medication and want her to be strong for surgery. I finally got to see her open her eyes! which there olive green!=] but the nurses said they would change=[... i update once again if i hear ...
I'm a survivor! I'm a 21 (soon to be 22) year old survivor of Congenital Diaphragmatic Hernia. I've had my health issues that have stemmed from it, but with the help of my family and friends, and of course my amazing doctors, I've gotten through it all. I have a bit of a morbid sense of humor, but its a sense of humor that had helped me cope with everything. In high school I was active on a Patient Advisory Board at my local Children's Hospital, and through that board ...
Bryson Alexander has went home to be with Jesus, and walked straight into His loving arms. He was taken home at 12:10 p.m. Wednesday afternoon on January 4, 2011, and greeted there by his grandma Judy Dobbs and his little friends Liam and others. This probably will be one of my last post as my journey is slowly coming to a close and God's path that he has taken our family on is ready to conclude. The pain of losing my son is great and my husband and i are deeply grieved. The responses ...
Recent Comments