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Ok...big update on Avarey...first of all thank you for every last thought prayer question well wish and concerbs...it is amazing to see how many peoples hearts Avarey has touched...she sure has grabbed a hold of ours...Kevin and I are so thankful to be blessed with such amazing people in our lives...thank you!! Now the princess has had a great day!!! They kept ger on the jet vent instead of switching to the traditional bc right now it is gentler on her...they have completely turned her paralisys ...

Good Afternnon, My Gorgeous, Most Precious Angel Boy, Liam,

My mind is flooded with many thoughts, fears and questions. I am struggling to find any words that can properly express what I am thinking and feeling, but I am at a loss. I know that you have your little arms around me and are comforting me and guiding me through the particular valley we are all walking through right now. I know that you are listening to my every word and hear me loud and clear, as I talk with you every ...

Originally Posted by KimFitzgerald

My little boy is a CDH survivor and he is now 2. We just went to our yearly follow-up appointment with Pediatric Surgery. According to his x-ray his diaphram is up to high. The doctor refered to it as being "loose". We are now looking at a repair. Has any other family had this or a similar issue?

Hello, My Gorgeous Angel,

Yesterday brought some very heart-wrenching news. Upon meeting with our lawyers about the car accident you and I were in while you were in my tummy, it was made clear that my MRSA infection and surgeries did not affect you in ANY way. This was such good news to hear, as it creates a bit more peace in knowing that what I had didn't harm you. The troubling news came when they read me your records from Boston. They found some very interesting-not in a good way- ...

Haven't had a lot to update lately, but Ethan is doing really great. He started back to therapy and we hope he will be turning a corner soon. It is just such slow progress. He did taste of a bite of chocolate and without us asking, he said, "taste good." I was very impressed. Then last night he drank a few sips of his pediasure and said, "milk good, my milk." It was so great. We'll see how it goes but I was very excited.