Recent Blogs Posts

Surgery to move the intestines out of the diaphragm and into the abdominal cavity was scheduled for sometime after 5pm on Monday 14/11/2014.
Fortunately my husband and I went home from work slightly early to sort out all the farm animals on our small holding before going to the hospital for the BIG wait.
At about 9pm Prof Beale began what was about a two hour operation, not without it's complications.
The intestines (it seems like only the intestines had moved into the diaphragm, ...

After being airlifted from Benoni to Johannesburg Matthew was stabilised and grandparents were permitted to see him briefly.
My first viewing of a very special little boy.
All I could think of when looking at him was how can a little baby who looks so perfect on the outside be so broken on the inside.
The paediatrician looking after him explained what they were going to be doing and shared two of Professor Beale's (the paediatric surgeon who would be operating on him) success ...

Our precious little grandson, Matthew Marx was born on Thursday, 20/11/2014 at 5:30pm by c-section. The first indication that we had that there was anything wrong with him, was when my son came running up the stairs from the theatre to the waiting room to say that he was battling to breath and had been taken to ICU.
From thereon began our hours of stressing, waiting and praying.
I assumed that it was nothing critical and was in for a BIG surprise when the paediatrician and gynea came ...

I have been a member on here for about 4 years now and honestly I just recently gained regular access to a computer. You will have to bare with me as I am still trying to navigate this site. It only took me 20 minutes to figure out how to post to my blog

It is coming up on 7 years since we got to meet and had to say good bye to Isabelle. She is still on our minds daily. Every year we take her a gift and the family sits in the car eating Chipotle. I am sure this sounds pretty odd ...

Well it's been almost two and a half months since I lost my son Nakyler Anthony to CDH .. He was delievered at 5 months because his CDH was life threatening and also my body gave up on him .. i still yet have not accepted it nor grieved about it .. i am upset with myself as if i couldn't save him as he passed away in my arms .. he's been cremated and i have his ashes and yet it still doesn't matter i want my son here .. i ask why him .. i ask many questions that i will never get any answers to ...