Recent Blogs Posts

I can't believe that it's been almost 2 weeks since my last post and very little has changed.
Matthew's condition since his second operation has remained stable. He was taken off the ventilator on the 5 December and onto oxygen. All his medication had also been removed and we have just been trying to wait patiently for the bile in his stomach to clear so that he can begin feeding.
My son and daughter-in-law are sitting with what feels like gallons of breast milk, expressed and labelled ...

My daughter Salem's story is a long one but please listen
Salem is 4yrs old and has autism on top of her diaphragm problem. She has autism and is gifted, has a memory like a computer lol. So its virtually impossible to get her any tests (xrays, blood tests, ivs put in ect.) I was ignored for the first year and a half about her diaphragm issues. But I was handed a miracle that she even survived that long! I refused to leave the hospital on dec 6th 2012 until they gave her an xray. They finally ...

Today was another milestone reached in our precious little Matthew's life.
The Prof pushed all of his intestines into his abdomen, removed the bag and stitched him closed.
The operation seemed relatively uneventful compared to last week's major surgery and the Prof and anesthetist came out looking pretty happy.
The Professor is a man of few words, he just walked out of the NICU unit (where they performed the operation due to the fact that it is too risky to move Matthew) gave ...