Recent Blogs Posts

Today we had appointment with the surgery clinic but prior to the appointment they ask us to take Damion down to radiology to get a chest x-ray down first. I was so worried because Damion has been severally constipated and was just in the er for running a temp. 102.0 and higher for several days. We went in to see a Dr. Hendricks to see the outcome instead a different nurse who works with him come in and told us Damion chest x-ray was perfect, the patch was still in place, and there was no fluid ...

Hi everyone, im knew to this site... I just want to wish everyone a Merry Christmas! to the parents that are grieving I would keep you in my thoughts and prayers... On May 1st 2006 my baby boy was born but he passed to hands of God the same day.. ever since i have been wanting to find a site like this and try to get as much info on CDH since at the moment I did not know anything. Every yr a celebrate his birthday like if he were here with us... He was my 2nd child and my husbands first born.. hes ...

I want to wish everyone a Merry Christmas & Happy Holidays! I pray for all those families of Cherubs on Earth & in Heaven! My heart aches to see the numbers of babies born with CDH across the world. Keep faith, hope & pray because miracles do happen!

I wanted to take time to wish you all a happy holiday!! I hope its the best possible, and for those of you grieving i hope you can find the peace you need to make it through such a difficult time. Happy Holidays!!!

With the Holiday season in full swing, I find my self feeling more tearful then ever. It has been almost three months since Lucas came into our lives and left us three short days later. I know i must go on for my other children and celebrate christmas as we do every year. But for me celebrating anything is the last thing i want to do. We did decide to have 2 trees this year a little table top tree for Lucas as well as our usual big family tree. The little tree honoring Little Lucas has blue lights,little ...