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On September 8, 2015 we found out our son had CDH. On September 18, 2015 we found out the CDH was a result of Pallister-Killian syndrome. As we were heartbroken, we remained to have hope. MRI showed he had no left lung growth, stomach, intestines, and majority of his liver was up on the left side. We were given a 0-1% chance survival rate. At that moment, we had to decide what would be best for our baby to not struggle or live a horrible life, and that was to do comfort care when he was born. ...

I found out my son had cdh on my 22 week scan only his stomach and intestines where in his chest but I found out when I was 25weeks that Alfie's lower valve of his liver is also in his chest his right lung can not be seen as it is being compressed and his heart is also being pushed and compressed his right lung is visible but also being compressed the doctor keep saying the same thing all the time he has a 50/50 chance of surviving and I have been told he could have a heart attack at any point so ...