Recent Blogs Posts

I have been so involved in the new parents on this site and have been wanting to remember what feelings I had after we ewre diagnosied. I want to help them, but sometimes wonder if they want to hear from the mom of a non-survivor. I know when I joined that I just wanted information. I know that both parents of survivors and non survivors go through the same things prenatally, so I shouldn't worry, but I do. I just want to help them the way so many on here helped me out.

It seems ...

I can't sleep. I just miss Madison. I feel like everyone thinks I should be over her death already. I feel guilty going on with life. I know I have to for McKenzie. She deserves the best Mom I can be. I quit taking my meds since they make me feel sick. I learned I need them to stay focused. I know take them during the day and they don't make me sick. I guess I should try to sleep because I have to get up and take care of Kenzie in thew morning.

My son Jacob Ray Hall was born on May 2nd 2008 at 11:13 A.M. He was 8lbs11oz and 22 inches long. He was born with an undiagnosed Left Sided CDH, and was immediately taken to Mass General from Maine by ambulance. He was intubated and had lots of IV's and other tubes leading everywhere. On May 4, 2008 Jacob underwent surgery to repair his hernia. The surgeons found that all of his bowels, his stomach, his liver, his spleen, where all in his chest cavity, and they managed to fix it. Jacob was extubated ...

2 posts within a month... amazing, huh? ;)

Things here are still hectic but good. The events are coming along, the media is now on board. The event sites are getting hit constantly by local people, people learning about CDH and others keeping tabs on what CHERUBS is doing (TAIWSOT). We've decided to allow other dress colors as well and made it a black and white ball instead of just white ball - this has greatly increased the interest in the Angel Ball. The Golf Tournament is ...