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  1. Phoebe the fighter

    Quote Originally Posted by Megan Kleensang View Post
    This is my daughter Phoebe's fight with Congenital Diaphragmatic Hernia. She has been an amazing fighter and she is my cherub!


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  2. Emotional Rollercoaster

    Since my original introductory post a lot has happened. Between numerous doctor and hospital visits, we have been riding an emotional rollercoaster: being elevated just to come screaming, speeding down to another bump or bend along the way.

    Today we were taken for a pretty alarming turn.

    We are currently at 28 weeks gestation and have officially entered our last trimester. What I've been describing as the honeymoon phase, where we were blindly optimistic, has come to ...

    Updated 09-26-2013 at 09:38 AM by SamanthaStein

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  3. Axael what can i say...

    well what can I say, write, tweet, post etc.... but that he's doing great. Better than I could have dreamed. Hes so independent, brave and full of energy.
    First his doctors appt... cardiology gave him a 3 years pass. His echo, ekgs and what not are all great even after his endocarditis earlier this year. The doctor says he saws him in fine health and to return when he was 5 before kindergarten... can you believe that KINDERGARTEN!!!
    Pulmonary said the same. He free to go but mostly ...
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  4. Catching up on the latest news and doing some math.

  5. Journey of a Non-Traditional Pregnancy

    September Update:

    So the last time I wrote a blog post here, we were at 20 weeks and had just found out our 2nd son would also have CDH. Since we are now at 37 weeks and scheduled to have a c-section in a couple weeks, I think it’s time to play a little catch-up.

    After finding out our son would have CDH, we rushed to have an amniocentesis and fetal MRI. The amnio would hopefully give us an indication of whether our son had any other chromosomal abnormalities (which ...
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