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  1. Another Day At Childrens. (:

    Well so far, my son has some break down of the skin and some blisters around his trach because of the spit ups he has that slides to the neck. My poor little man, he seems to cringe when looking at the site, also seems to cry or get fussy when doing trach care. How i wish i can switch places, but i think all mothers would. How can such a small little innocent baby be put through so much?I alwqays seem to ask myself these types of questions. But my son is here another day, close to his next surgery, ...
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  2. My Son is a CHERub.

    So im new to this blog stuff. But my name is Jasmin i am 16 years old, and when my son was born me and my boyfriend found out he had CDH. We didnt know what thi meant or what it was! Didnt even know things like that even existed. But yeah my son went on to fight this difficult battle, at time it seemed as if he was going to lose, but my son is a fighter nd he didnt let CDH win. So far he will be 3 months tomorrow. on July 18th he will get hi GJ tube in, so thats what we're waiting on. With so much ...
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  3. Broken hearted

    Last weak I lost my husband Martin suddenly. He went into hospital for a routine procedure and something went wrong and he passed away on July 2nd. We have always supported each other in raising our 15 year old daughter born with CDH. Now I feel completely alone. Please keep me in your thoughts and prayers
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  4. Missing You, My Liam!

    My Dearest Liam,

    I really don't know how to articulate how much I miss you! There are days when life seems more bareable, but nothing is easy. The day you passed was the worst day of my life- and I know the worst day of Daddy's and Landon's too. I remember every detail of that day and each detail hanuts me. The most haunting memory is when I called your Nonna and Grandpa to tell them to come to Boston quickly because you weren't going to make it. The sound of Nonna's voice haunts ...
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  5. Thank You!

    Thank you to everyone at CHERUBS for your support and kindness on Liam's Angel Day! Yesterday marked the 2-year anniversary of Liam's passing. I hate to even use the word "anniversary," as "anniversary" often implies a celebration of some sort and Liam's passing is not something to celebrate. It's hard to believe that it's been two years since we lost Liam. It truly seems like only yesterday in the sense that I remember every single detail of that day, but it seems like forever ...
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