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  1. please help me deal with this

    My daughter Salem's story is a long one but please listen
    Salem is 4yrs old and has autism on top of her diaphragm problem. She has autism and is gifted, has a memory like a computer lol. So its virtually impossible to get her any tests (xrays, blood tests, ivs put in ect.) I was ignored for the first year and a half about her diaphragm issues. But I was handed a miracle that she even survived that long! I refused to leave the hospital on dec 6th 2012 until they gave her an xray. They finally ...

    Updated 12-02-2014 at 04:18 PM by ChelseaT

  2. Matthew's second surgery

    Today was another milestone reached in our precious little Matthew's life.
    The Prof pushed all of his intestines into his abdomen, removed the bag and stitched him closed.
    The operation seemed relatively uneventful compared to last week's major surgery and the Prof and anesthetist came out looking pretty happy.
    The Professor is a man of few words, he just walked out of the NICU unit (where they performed the operation due to the fact that it is too risky to move Matthew) gave ...
  3. Matthew's surgery

    Surgery to move the intestines out of the diaphragm and into the abdominal cavity was scheduled for sometime after 5pm on Monday 14/11/2014.
    Fortunately my husband and I went home from work slightly early to sort out all the farm animals on our small holding before going to the hospital for the BIG wait.
    At about 9pm Prof Beale began what was about a two hour operation, not without it's complications.
    The intestines (it seems like only the intestines had moved into the diaphragm, ...
  4. Waiting before surgery

    After being airlifted from Benoni to Johannesburg Matthew was stabilised and grandparents were permitted to see him briefly.
    My first viewing of a very special little boy.
    All I could think of when looking at him was how can a little baby who looks so perfect on the outside be so broken on the inside.
    The paediatrician looking after him explained what they were going to be doing and shared two of Professor Beale's (the paediatric surgeon who would be operating on him) success ...
  5. Day one and two of Matthew's life

    Our precious little grandson, Matthew Marx was born on Thursday, 20/11/2014 at 5:30pm by c-section. The first indication that we had that there was anything wrong with him, was when my son came running up the stairs from the theatre to the waiting room to say that he was battling to breath and had been taken to ICU.
    From thereon began our hours of stressing, waiting and praying.
    I assumed that it was nothing critical and was in for a BIG surprise when the paediatrician and gynea came ...