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  1. Both hyplastic left heart syndrome and cdh

    Yesterday I meet with the neonatologist and he told me my baby has a zero percent chance of survival after she is born. Because she has two diagnosis that work against each other. I am trying to find at least one person who has had a baby with both. So far I have been unable to find any research or anyone who knows about both conditions. the doctors are really pressuring me to make a decision now before baby is born so we can have a plan. But I want to fight but part of me feels like I should enjoy ...
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  2. Update on Tucker

    Tucker Lee arrived on May 20th at 12:31pm. He weighed in at 8lbs. 5 oz and 20 inches long. He did awesome during delivery & his first night in the NICU. On day 1 they started to wean his oxygen and he was doing well until the evening when he desaturated twice. They had to start over with the weaning of oxygen on day 2 and increased his meds to make him more comfortable and less excited. He did awesome that day and thru the night. Today is day 3 and they are continuing to wean in the hopes of ...
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  3. Meeting our little man tomorrow!

    Tonight we go into the hospital to be induced at midnight and tomorrow we'll get to finally meet our little man! I've think I've officially gone thru every emotion possible over the last 24 hours - scared, sad, excited, anxious, nervous, you name it!

    I feel prepared up until the point he comes out, but the unknowns after he is here is what drives me crazy.
    Will he cry when he's born? How well will he do? Will he be better or worse than they think? Will I get to hold him ...
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  4. Update

    So I haven't been on here for a little while been spending most of my time at the hosptial Thomas is doing good he is on contact precaution
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  5. New email