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This is a little (i.e. a lot!) long so settle in….. I found CHERUBS in 1999. I had just joined the computer age and got connected to the Internet for the first time. I decided to see what I could find on Diaphragmatic Hernias. It had been almost 7 years since my first baby Alyssa had died from CDH so I was positive there would have been huge advances - maybe they now knew what caused it! How wrong could I be!!! But...... I found CHERUBS and that changed my life in such ...