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  1. Life after Ridley

    It's been a long a 14 months since I have posted a blog here. After we lost Ridley time seemed to stop for me I was stuck in those 17 days, 17 wonderful days, with him.

    My family and I have been through a lot. We have fallen apart and picked up the pieces a few times. My little girl still asks if we can go to Heaven to see our baby. I hate that the most, she was denied the brother that she so wanted. That we all wanted, and needed.

    I still don't attempt to understand ...
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  2. Feels like Forever

    I seriously think it should be Friday already. I am TIRED! Appointment on Monday went fine. Didn't seem to have any new concerns anyway. The one yesterday went pretty well too. My regular OB measured yesterday and her measurements said Delaney is 5 lbs. Which is good news! The specialist will measure next week and hopefully we continue to get good news with it and she will be 5 and a half lbs. or more. Monday is our meeting with the hospital and I have no idea how to prepare for it. I feel like ...
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  3. Thank you

    I know all of the people on here have 'sad days'. A day when tears come easily. I am having one of those days today so I'd like to give thanks.

    Today is CDH awareness day so I jumped on here to catch up with the cherubs family. I remember very well how scared I was when we found out our unborn son had CDH. It saddens me to read about new families having to deal with this medical condition. And it breaks my heart to read about other parents grieving for their children who have passed ...
  4. No surgery just yet!

    well I haven't updated since our appointment on the 16th of April... Gavins Trachea is just a little too small for the stent , so they want us to come back on May 1st to check again, and if his trachea is big enough they're going to go ahead and do the surgery as quickly as the next day... I have a little extra fluid due to him not being able to breathe, but my cervix looks great , so no big concerns there... also his height, and weight is at the 52 percentile so he's doing great!!!!
    Anyone ...
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  5. Quick Update

    First appointment of this week is over, and it was good. Actually. Delaney is still passing her nst's with flying colors and is still kicking up a storm. Her right kidney is still enlarged but is not moving up or down which is good. Her stomach is still up in her chest and her heart is still in the same position and squished. None of that has changed for like a month. The only thing that changed is the pressure in the cord went down some, it is now in the upper end of the normal range which is still ...
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