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mandymorena

  1. Axael what can i say...

    well what can I say, write, tweet, post etc.... but that he's doing great. Better than I could have dreamed. Hes so independent, brave and full of energy.
    First his doctors appt... cardiology gave him a 3 years pass. His echo, ekgs and what not are all great even after his endocarditis earlier this year. The doctor says he saws him in fine health and to return when he was 5 before kindergarten... can you believe that KINDERGARTEN!!!
    Pulmonary said the same. He free to go but mostly ...
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  2. Axeal :-D

    Wow its been a while since Axels last update. Well he turned 2 in December and is doing great. Hes been talking up a storm. He recently started sing the Wonder Pets theme song. Brings tears to my eyes he's doing so well. He has OT twice a week. He likes his therapist. Things are progressing slowly. He eats about 80% of his daily intake by mouth yet is still at 21pounds. He runs around so much he burns the calories just as soon as he eats them. Becoming very vocal in what he wants. Repeating almost ...
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  3. a little update

    I know it's been a while since I've posted about Axel. But I'm glad to say he's doing great. He passed his swallow study, except he can't drink from a straw(something he loves) because he asparates very slightly. His weight is about the same 20 pounds. He is walking great. A little wobble but is fast and stop for no one. His big brother Jando started Pre-K in August and Axel hates it. He misses his big brother so much. But I've been taking him to the gym daycare and he is able to play with other ...
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  4. 18 months and counting

    Tomorrow Axel will be 18 months old. I can't believe it. He has improved so much since my last post. About two weeks ago he started walking. He is doing so well. We thought he wasn't going to walk till he was 2 years old. He just didn't seemed to want to try. But now he is everywhere. When I see a door open in the house i look towards to floor thinking he's crawling but have to raise my eyes because he is walking in the room. He is also climbing on to the sofas and the beds. Riding his ride on toys ...
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  5. Thank the calorie Gods, lol

    Axel was recently switched from pediasure to Boost Kids Essentials. He's been on it about a month and what a difference those calories make. He might not be a butter ball but he sure has filled out to where one can notice it. Carrying him has become a switched from arm to arm or switch from parent to parent thing. He is getting heavier. One thing his is getting better at and i can say has mastered is pulling up. Anywhere and everywhere he is standing. He cruises along things nicely but to take a ...
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