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  1. day 10

    day 9 was great, extubated!!! day 10 chest tube is taken out, ng tube out and feeding tube in, mekhaai has his first meal of breast milk, lets hope he tolerates it well, they will be doing by tube and by mouth just to see how he does. I get to hold him all day If I want now, the nurses he has are great, he has had the same nurse for a while now and she was here 12 hours yesterday and then had to stay another five due to a staffing mix up, then she back 7 hours later to do her next regular shift, ...
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  2. one day at a time

    Yesterday and today were good days, the baby recovered well from his surgery and the scare we had with the lung, I guess they nicked it during surgery and then he was on high pressures after surgery and that is what caused the air to leak out into his chest area. It seems to be healing nicely and they have turned the drain tube off that is in his chest and are just watching it, the xray showed no signs of air building back up, so that is good news. He is now on 24% oxygen and we breathe 21%, they ...
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  3. Gray areas

    This has been bothering me, so I figured I would get my thoughts out on this blog because I am not a doctor and these are just my thoughts. I am an attorney, and I never work in absolutes. There is very rarely a yes or no answer to anything, it is always a matter of argument with facts leaning towards one side or the other. I believe that medicine, especially with regard to the proper treatment of CDH is the same way ... or it should be. I am not an expert but I have read countless blogs now, ...
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  4. too much too soon

    I GUESS I HAVE BEEN FEELING A LITTLE TO HAPPY AND BRAGGING A LITTLE TOO MUCH. THE BABY WAS DOING AWESOME FROM BIRTH, THEN LAST NIGHT HE WENT IN FOR SURGERY AND THEY CALLED TO TELL ME THEY WERE ON THE LAST STITCH OF HIS DIAPHRAGM WHICH WAS THORASCOPIC SURGERY, THEY SAID, IT WAS SMALLER THAN THEY THOUGHT AND HE HAD STOMACH,SPLEEN,SMALL AND LARGE INTESTINES UP IN HIS CHEST AND THERE WAS MORE LUNG THAN EXPECTED AND IT ACTUALLY GOT IN THE WAY, SO WE WENT IN TO SEE HIM AND WE WERE HAPPY AND ON TOP OF ...
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  5. he has arrived Mekhaai James

    mekhaai was born 3/17/10 at 3:12 pm by c-section. He was 8lb 12.1 oz. I will never ever forget the moment he was born, they walked past me with him, he was dripping wet and they paused for second to show him to me and then the started working on him. He was breathing on his own but I didnt know it at the time. I didnt hear him make a sound and they were working on him right in front of me so I could see everything and I was trying hard to listen to them talk, it seemed like forever, I heard ...
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