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  1. Gonna Be Grandparents AGAIN

    Our Left Sided CDH Survivor Son (Charlie) and Daughter-N-Law (Kelli) just announced that they are Expecting Twin Girls in July 2013..

    Please Join Us In Our Celebration !!!

    Debbie & Gerry Freed
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  2. News

    The doctor called about 45 minutes ago. The Chromosome tests all came back normal. She has a fighting chance now. I feel free and hopeful for the first time in a week. I'm emotional about it, still wanting to cry just from sheer relief. But now her chances of survival have increased again. I wait another week to go back to the doctor and then I WILL take a list of questions. I want to know where we go from here. I know we still have a long road ahead, but I feel her kicks getting stronger everyday ...
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  3. So where am I now?

    Well, Tuesday's appointment did not go as I had hoped. We got more bad news. Her CDH is severe. They can't tell how much lung tissue she has on her left side because the liver is blocking them from being able to see. Also the left side of her heart is quite a bit smaller than her right side. The doctor was unsure if its just because its crowded or if its another defect caused by a chromosome problem this time. So we are doing the DNA testing thing. I was devastated to hear this because of what happened ...
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  4. The Beginning

    January 14th. I was nervous but also very excited and hopeful. I never imagined they would tell me what they did. I had never heard of CDH before. I spent the rest of that day and the following day in a daze, mostly numb and unsure of how to feel. I researched...and then broke down. Three days ago I found out. I have been finding it hard not to cry today. I spent all of yesterday afternoon and evening crying. This is my third pregnancy. My first was unhappy circumstances and I had decided to give ...
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  5. Complications

    I started having contractions on Monday the 14th. My doctor checked me but they haven't been doing anything at that point. I have 32cm of fluid so although I am only 33 weeks I am measuring full term. On Tuesday I started having a lot of contractions again and so I came back to hospital. I was dilated to 3. I was so upset I couldn't stop crying. I have been in the hospital since and they have stopped the progression on the labor. I hope we can push it out as long as possible. The pediatric ...
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