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  1. Ever used this therapy for Pulmonary Hypertension?

    I'm trying to find research done on Inhaled Prostacylin or also known as Iloprost.
    Inhaled Vasodialtor used with nitric Oxide to help treat Pulmonary Hypertension.
    Anyone heard of this?
  2. Killian as of now..and some of his past

    Just wanted to give a brief of Killians story, i created this while i was still pregnant and then got a bit busy and over whelmed after his birth.. my sister runs a blog site and his FB account and CDH Cherub Killian on FB.
    Killian was born January 2nd he spent 24 hours off of ECMO then he was on ECMO for 6 days, he had his repair surgery while on ECMO. The closed his repair insicion but after a day or so he had extra blood and pressure in his abdomin so they ...
  3. Update Amairani Vianney

    she is going home thursday off oxygen, NG tube, kinda wants a bottle but is still scared of it. shes off all meds, gaining wieght , & is set to go home now but i asked to make a extra trial run just to make sure ;] i have a facebook so add me tons & tons of pics of amairani on it search eli corea or let me know your name if you cant kind me ;]
  4. Ethan's appointment with surgeon

    Ethan is sitting here trying to sing "Twinkle Twinkle Little Star". He had a fantastic appointment with his surgeon yesterday (Friday 3/2). His right lung has pretty much filled in his right chest. His diaphragm was still a little up but so much better than last year. A big bulge that was concerning was gone. Praise the Lord that his lung is growing. His surgeon explained to a resident that he had the worst Right CDH and that he was wasn't eligible for ECMO because of his size ...
  5. A lot going on

    We have had lots of things going on lately. We've moved into a new house. The move was easy and Axel loves the new place. He scoots everywhere with ease. Pulling up everywhere he can get a grip. His last check up with ECI nutrition said he had gained 1lb and 3oz. in one month. It might not seem like much but its better than nothing. He has been struggling with his weight gain forever now. His being more mobile doesn't help any either. Burning all those calories. Wish I could do that, lol. He's been ...