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  1. An Introduction

    Hi there,
    My name is Samantha. I am 28 years old and have two daughters; Leyla (age 5) and Ivy (19 months). We are currently expecting our son, Jackson, who was diagnosed with CDH at 21 weeks gestation. Our due date is December 16, 2013.
    Admittedly, my spouse and I had no knowledge of CDH prior to being diagnosed. I am still trying to digest the reality of it all.
    The past month has being filled with every emotion you can think of; notably fear, helplessness and denial, and ...
  2. 8/17/13 1st week of Pre-k

    Ethan's first week of pre-k went great. Ethan was nervous on the first day and even cried a little Tuesday morning. But by the end of the week; all he could talk about was going on the playground. Thursday and Friday it rained cats and dogs (it is continuing today) and they didn't get to go on the playground. Ethan was disappointed about that but had a great week anyway. He even drank a cup of whole milk one day. Yay, Ethan. He just had to have a straw and his teacher was kind enough to ...
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  3. Words.

    Stay strong.
    Hang in there.
    Never lose faith.
    Never stop beliving for a better tomorrow.
    Smile.
    Never mourn.
    Never show your weakness.
    For you are strong.
    Love again.
    Free yourself.
    For you are a child of God.
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  4. John and golf

    After 13 years of ups and downs, I'm finally going to post GOOD news! My son made the school golf team!!! I'm so happy for him--he's finally able to play a sport. In school golf, the kids are required to carry their clubs and walk the course. Due to John's severe pulmonary hypertension, his cardiologist wrote a letter to the athletic department to allow John to ride a golf cart for his matches. We were thrilled! But guess who has to drive that cart---ME! Yikes! I know nothing about golf--hee, ...
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  5. 8/10/13 Pre-K

    Ethan is 4 years 9 months old has had a wonderful summer. We went to our family reunion over the 4th of July and he enjoyed playing with all the other kids. He even rode his big wheel by himself for the first time. We went to Panama City Beach this past week. He was scared of the water at first, but once he got in, you couldn't keep him out of it. He kept asking me to take him out in the water and float around with him. I did and we both enjoyed it so much. He just kept telling me he ...
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