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  1. Sad for the Angels

    Averi Gaynor did pass away. I am so sad for her family. And Brianna Hayes family. Both passed away right around Christmas and I know their Christmas will always be darker for the rest of their lives. Mine could have been .... I am so lucky and so very grateful that Christmas is a day of celebration and not grief. I got a miracle ... and despite what I know about CDH, I always believe in my heart that each baby I read about and pray for will survive. Just as I believed with all my heart that ...
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  2. scared and can't sleep

    I found out that my baby boy would be fighting CDH in novemver 2009, they first told me they thought it was a hernia because the heart was slightly to the right but they were not sure if it was just one picture because all the others looked fine. Then they told me at the next visit it was a ccam or lung cyst, I was so happy it wasnt the cdh that I had looked up the week before and I cried tears of joy, then I went for third ultrasound and they said they were leaing toward CDH and I had an amnio ...
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  3. Praying for Averi Gaynor

    I hate it when the last post is an urgent request for prayer and then silence on a blog .... please be okay!!!! I am praying for baby Averi ... she has come so far! It hurts my heart!!!
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  4. Dakota's First Birthday and Christmas

    Well, despite all my careful planning (Derek and I actually calculated it and did not start trying until her birthday would be February at he earliest), Dakota's birthday is on Christmas Day, so her birthday celebration got folded into the Christmas celbration. Nevertheless, it was a very special day. I am so grateful that we are where we are and that we have my little girl to celebrate with. She is so cute! She did not really open the presents but she liked to play with them once they were ...
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  5. Dakota's Story

    Dakota will be one year old on Christmas Day! I always wished I did a blog, so I thought I would start by posting her story in detail:
    When I found out that my baby girl Dakota had Right-sided CDH (at 29 weeks), the first thing my OB said is that you will not be having Dakota here in Naples, Florida. I live in Marco Island, Florida where there is no hospital; the hospital in Naples, Florida is a 50 minute drive, and even that hospital has only one neonatologist and no level III NICU-no ECMO ...
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