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  1. feeling guilty

    On December 6, 2011, I lost my little Leelu. In May of 2013, we found out that we were expecting again. Which of course caused a whole host of emotions (as well as a ridiculous number of doctor appointments throughout the pregnancy). So now I'm sitting here, watching my beautiful 5 month old Seraphina and feeling an overwhelming amount of guilt. I'm so thankful to have my little girl, but if Leelu had survived, I never would have gotten pregnant. So does that mean I shouldn't be thankful for Sera ...
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  2. my first pregnancy, lcdh, feeling lost

    My daughter is due on September 30th, and we found out when I was 20 weeks pregnant that she had a left sided diaphragmatic hernia with part of her stomach and liver in the chest cavity, heart pushed to the right.
    We weren't told until my appointment today (5 weeks later) That my baby has very little lung tissue on both lungs. Until today I had been pretty good at staying optimistic, but hearing how little lung tissue she has really makes it hard to look on the bright side.
    Did any ...
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  3. Feeling Down Today

    Hi Everyone, I've been feeling pretty crappy all afternoon/night.. and the only thing I can think of that will make me feel better is to write it out, regardless what people may think of me after i say what i need to say.
    I'm angry, depressed, sad, and feel alone.. i'm also a bit jealous. I'm on facebook allot, like allot.. sometimes i think i may have a problem, but anyway. Allot of my friends on there are expecting babies soon, just like me. Except all of their babies are healthy. and ...
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  4. 7 week old, RCDH, questions

    Quote Originally Posted by AlexisK View Post
    This is my first time writing here & it has been such a busy 7 weeks that I haven't had time to share my story just yet but just to sum it up -- I found out at 19 weeks that I was having a baby boy & that he also had CDH. I delivered via c-section at 37 weeks. My son went on ECMO after about an hour after being born & stayed on ECMO for 11 days. He had his repair on day 11 as well. Besides the hernia, he hasn't had any other problems except for reflux. He is scheduled for his procedure
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  5. Expecting Baby Girl With CDH in September Blog #2

    Quote Originally Posted by CarlyD View Post
    Had my ultrasounds today, Jasmine looks great.. heart looked good, and no sign of hydrops right now which is what they are looking for. I got my doctor situation straightened out, I will be going to Mass Genn in Boston for everything, ob, baby care, delivery.. NICU.. ect.. And will have my ultrasounds every 2 weeks in Maine. I feel good about our appt today.. Trying to stay positive, and hope to learn more about Jasmines CDH when we get to Boston, I'm not sure how severe her case is right now.
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