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  1. Nebraska

    Is anyone here from Nebraska. I live in Nebraska and currently know no one from here on this site. Everyone's support here is amazing, just would like to know some people from my state.
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  2. New to the board

    Hello everyone!! My name is Wendy. I did join the board a few years ago but then life took over and I never had the chance to get on here so I am back and ready to talk.

    I will be 37 this year and was born with CDH. I am married, live in Ohio, Go BUCKS! My husband and I have five healthy children.

    I hope I get the chance to meet some of you. I read the post on fb all the time. It breaks my heart to see little ones slipping away because of this. To be honest, I never ...
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  3. Diagnosed with LSCDH

    We went for our 20 week gestation measurements and notified by our OB that our baby had CDH, and would be referred to maternal fetal specialist. On our visit, we learned indeed she had LSCDH and her heart was on the right side. And to get more depressing news was the specialist advised myself, spouse and my mother that there was no research in the U.S., and we would have to have lots of money to travel to Brazil for this type of research. As any parent who has received such news, I went into research ...
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  4. Ethan 10/27/13

    Ethan is doing very well. We just celebrated his
    5th birthday! Wow! Time is going by so fast. Ethan had the croup in August and caught a cold in September. He got sick again in October and missed some days of preschool. We believe he had RSV. The doctor didn't test him but he had a fever, stuffy nose, chest congestion and generally just didn't feel good. Taking lots of naps and all (normally doesn't take naps). My 2 year old niece had the same symptoms and when her doctor tested ...
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  5. Just found out my baby has RCDH......

    I am 32 weeks pregnant with a baby boy (Parker). I found out last week my baby has RCDH. I am scared to death by everything I have read so far. Any words of wisdom or help would be greatly appreciated. Emotionally I am at a loss for words. Just praying every second I have a chance. Thank you.
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