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  1. Another Bump...

    Yesterday was suppose to be the day that we brought our Baby boy home but Sunday Morning at 3 am. Dr. Kays got a call to the hospital because of Braxton's Behavior. The practitioners could not find out what was wrong. When Dr. Kays got there he called me immediately to give consent to surgery. He thought that Braxton had bowel obstruction. He said they may have to remove bowels or they may not. I gave consent and Dr. Kays said that he would call me as soon as it was over. A few hours later, he called ...
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  2. My grandbaby has CDH

    Hi my name is Angie and I am from Phoenix, AZ. My grandson was born with LCDH. He was born at 33 weeks and had surgery at 10days old weighing only 3lbs. My grandson is now 14months old and although all looks good with his CDH battle I now have a battle with CPS. He was taken from my daughter as soon as he was released from the hospital at 3months old. He is in a foster home with a nursing student who has now made it a mission to adopt him and has been reporting that when we visit him we are not ...
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  3. Trouble.

    Ricky's anatomy doesnt allow for a GJ feeding tube. So he just has a G tube, but it isnt working to well. He has horrible horrible reflux. And along with that he keeps spitting up, but Ricky is a strong little boy. nd continues to smile. i noticed he's very alert, and always looking at his fishy mobile. WELL the surprise is that he has MRSA, so everytime we walk into his room we have to wear a gown and gloves. It sucks alot. BUt i know everything will be oay. Just being tested by the big man upstairs. ...
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  4. HC Anderson poem

    Being Danish, HC Anderson is like a cultural thing for me. I found this poem and couldn't help thinking about all the cherubs in heaven.



    The Dying Child

    By Hans Christian Andersen.

    Mother, I'm tired, and I would fain be sleeping;
    Let me repose upon thy bosom sick;
    But promise me that thou wilt leave off weeping,
    Because thy tears fall hot upon my cheek.

    Here it is cold: the tempest raveth madly; ...
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  5. Another Day At Childrens. (:

    Well so far, my son has some break down of the skin and some blisters around his trach because of the spit ups he has that slides to the neck. My poor little man, he seems to cringe when looking at the site, also seems to cry or get fussy when doing trach care. How i wish i can switch places, but i think all mothers would. How can such a small little innocent baby be put through so much?I alwqays seem to ask myself these types of questions. But my son is here another day, close to his next surgery, ...
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