Stay Connected

View RSS Feed

All Blog Entries

  1. Cleveland University Hospitals

    We have a meeting with the docs at Cleveland's University Hospitals (Rainbow babies and children) on Aug. 28, 2012. I am looking for other CDH families who have experience with this hospital.
  2. 23 weeks prego and my son has CDH

    hi. everyone. i had to meet with a cardiovascular ultrasound tech cause my sons heart was pushed all the way to the right against the wall... when i met with her she let me know it wasn't the worst cases she has seen... BUT he has a valve right now that is measuring smaller then normal. and the way blood is supost to be flowing is flowing the opposite direction... she says this is happening because there is so much pressure on his heart from his stomach. she said he is still getting some blood flow ...
    Categories
    Uncategorized
  3. Hello

    I am 35, married 8 years. We are expecting our first child 11-10-12. Our baby was diagnosed with CDH at 22.5 weeks.

    They think the intestines are in chest but stomach and liver are down. Heart is pushed to right side but formed and functioning. Baby also has clubbed feet.

    We have been referred to University Hospitals in Cleveland, Ohio.
    Categories
    Uncategorized
  4. 08/12/12

    Ethan went to the eye doctor again Friday. His eye doctor referred him to another one to check the cyst on his eye. They said it could be from a stitch that was in his eye after his surgery in May or it could be because the muscle was pulled back doesn't allow the fluid to drain, but go under his eye covering instead. He said because it doesn't seem to really bother him and he would have to sedate him to drain it, to just leave it alone for now. If it gets bigger and unsightly or causes him ...
    Categories
    Uncategorized
  5. update: Amairani Vianney

    hello everyone would just like to say im blessed amairani is off all her meds and dosent seem to have any other problem, we havent been on here for a while now she about 6 going on to 7 months old she currently my world lol "Nani" how we call her cuz its much easier is a little DIVA now she loves clothes she knows whats hers and what she wants, nani has begun to sit up all by her self and wants alot of freedom too!! I cant belive that on new years eve i was so scared to have her and ...
    Categories
    Uncategorized