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  1. Emotions Abound

    Good Morning, Precious Lion!

    Nonna has been thinking about you much more these last few weeks. Bittersweet thoughts & hurts that will never heal. Nonna never knows when her emotions will spring up & overtake me.

    I was on transfer rescue duty over the weekend. We had to take a 2 year old to FAHC because he had pneumonia. I hadn't been to the Children's Ward since your big brother spent 2 days there before you were born. As we walked into the ward, I became ...
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  2. A Busy, Hectic Week Gone By

    Good Afternoon, My Gorgeous Angel, Liam!

    It has been a very long time since I've written on our blog. Aside from the chaos that is "life," a terrible GI bug has been going around our entire community and made a visit to HPHRC. The majority of the patients on our unit, as well as staff were all stricken with excessive nausea, vomiting, and diarrhea. A few folks made a trip to PMC across the street, others were able to ride it out. Today, no one is actively ill, but our units ...
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  3. A bad day :(

    I miss you so much J. I ache, I hurt, my arms are empty and heart is broken.
    You done us so so proud and all I want to do is make you proud to, I want you to be able to look down and be proud to call me your mummy.
    My heart skips a beat whenever people mention your name I go to grasp my belly, in the spots you used to kick the most, before realising your no longer there, and that all of this actually did happen and that it's not just a dream.
    I pick up you ashes Monday so ...
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  4. update: Amairani Vianney

    So now tht things have calm down I have more time to wright a little more and explian all tht was done. Amairanis surgery was on monday, at 2pm. Got to hold her before she went in, after two hours she came back super stable didnt need blood or get put back on any medication she had been on before. The surgens let me know she did wonderful, minimal bleeding, they did find she had a "sac" that was not a full hernia, her liver spleen small int. large int. stomach and bwl up in her chest. ...
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  5. Julian on Zantac again and doing much better

    Hi there- Im pretty new to the forum, and this is my first blog post. My son Julian was born with CDH in July 2011. We did not know he had CDH until he was 3 weeks old, losing weight fast and not keeping any thing he ate down. He was prescribed zantac by our pedi before we knew what was actually wrong. After Julians surgery, he was eating really well- but probably a month afterwards he started to scream and fight every time I tried to feed him. I guess I didn't really realize that he could still ...
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