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Baby Kanarra

Finding out that my baby is going to born with cdh has been the scariest thing ever. I can't sleep at night because all I can think about the what ifs. Every time I feel my baby kick all I think is can you please stay in forever so I can protect you. I have four older children 3 girls and 1 boy. And its so hard to know that I'm going to be away from them for pretty much the whole summer. I'm basically trying to do everything on my own. And this has been one of the hardest things I have ever been threw. I wish there was someone to give me advice on how to be the best mother to all five of my children and how to deal with all the emotions that I am feeling. I pretty new to this site so I am learning slowly but surely.

  1. Both hyplastic left heart syndrome and cdh

    Yesterday I meet with the neonatologist and he told me my baby has a zero percent chance of survival after she is born. Because she has two diagnosis that work against each other. I am trying to find at least one person who has had a baby with both. So far I have been unable to find any research or anyone who knows about both conditions. the doctors are really pressuring me to make a decision now before baby is born so we can have a plan. But I want to fight but part of me feels like I should enjoy ...
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  2. looking for advice and information

    I recently had my first echo on baby at 25 weeks. The doctors are telling me that they think she has only one side to her heart. And that her survival rates are much lower when she is born. I don't know if there is someone who has had a baby with cdh and a very serious heart defect survive. My daughter has a left side hernia with her intestines, stomach and part of her liver in her chest. I will have another echo done at 28 weeks. Can someone please give me some hope. I pray that maybe because her ...
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