AmyMiles

Yesterday we went to U of M and LOVED it there! They are so much more knowledgeable there and kind. We had an ultrasound and she is 1 lb 4 oz at 21 weeks gestation and 23 weeks for me. We had some more 4D pictures taken and they are ADORABLE! The docs at U of M really put us at ease letting us know that she falls into the high better to low great outcomes. So her condition is high on the mild side and low on the moderate side. If that makes any sense. They were upbeat and positive about the outcomes, though a lot is still up to Faith and how much of a fighter she is. And she is a fighter! She is always moving around like crazy!! Yesterday she was completely breech for the first time and her body was shaped like a V. With her hands and feet up by her face. They turned on the 4D and she was wiggling her toes and grabbing her feet, yawning and lots of cute things:)


Her LHR was 1.44! YAY!As far as her condition, her stomach, part of the intestines, and a small piece of her liver are in her chest cavity now. Which is a little more than there was a few weeks ago. But they were all positive and the right lung is developing fine. They are going to do an MRI to get a better picture of the liver and lungs. They are also goign to do an echocardiogram to double check her heart, b/c the left side has low flow and is a little smaller, but all the right parts are there and working.

He predicted that she will be in the NICU for about a month, they will do the surgery a few days after birth as long as she is stable. Then the lengthy process is weaning her off of the ventilator and IV feeding. She will then get a feeding tube and be taught how to eat or "nipple" as they called it. Her need for ECMO is low, but only Faith can decide that.

We also had a tour of the NICU, there were 2 CDH babies in there at the time. We did not get to see them b/c the parents were away.

We are very excited about their findings. They are all so educated and the team of doctors all communicate with eachother at least once a week and they do rounds together. Though we know that there will be bumps ahead, we have a very positive outcome predicted.