Danielle Howard

So we have a beautiful little 4 year old boy and who to this day has just been perfect besides all the little things that happen to kids. Last night while on here reading all the other parents' stories, i came across a mom who had a son who was 5 and presented with late presentation cdh. After that i got into the forum where so many people are dealing with having another child with cdh. My son for the past 2 months seems to have been sicker than normal, first with strep, then right when we lost Sienna, he came down with an awful vomitting bug and then 2 weeks later after that a terrible cold. The only thing is that through all of this he is constantly complaining of a tummy ache, to the point of every single day. The mom who posted about the late presentation cdh said her son always had tummy aches and she always passed them off as indigestion. Well that started the rollercoaster today. By 8:30am i was on the phone to the doctor after reading several journals about late presentation cdh and jake had symptoms and my heart sunk. I couldn't keep myself from thinking is that why we lost Sienna, was to help me find out what this was and help our little boy? The questions killed me all day. After seeing the doctor and telling her what we lost our baby to, she seemed as worried as i was and ordered the chest x ray and abdominal x ray to r/o the cdh. I was sick. Took him for those immediately after, got a call from the doctor 2 hrs later saying everything was right where it should be and there is no defect in the diaphragm. it was like 30 bricks had been taken off my shoulders. We're starting to try famotidine tonight because she thinks he definately has some type of acid problem that is triggered by certain foods and stress....his belly hurts when he gets in trouble or doesn't want to go to preschool. Hopefully that all helps. But wow, what a rollercoaster ride. Something that i would have never thought of until Sienna and it completely correlated with his symptoms. it's amazing how she has changed my life so drastically and the little things that i do not take for granted anymore without her here.