So where am I now?
by
, 01-24-2013 at 09:56 AM (2589 Views)
Well, Tuesday's appointment did not go as I had hoped. We got more bad news. Her CDH is severe. They can't tell how much lung tissue she has on her left side because the liver is blocking them from being able to see. Also the left side of her heart is quite a bit smaller than her right side. The doctor was unsure if its just because its crowded or if its another defect caused by a chromosome problem this time. So we are doing the DNA testing thing. I was devastated to hear this because of what happened to me previously. But Also, to do the testing, rather than do the amniocentisis, due to the risk issues, they are doing it with a blood test. They took two big vials of blood from me. And to get them they had to poke me a bunch of times. I have small veins and they always have trouble getting blood from me. So it took awhile and actually kinda hurt. But loss of blood seems to have had a negative affect on me. My throat is very sore the last couple days and yesterday I even stayed home from work and slept all day. I could easily sleep all day today too. I feel like my tiredness is making my outlook on Delaney's prognosis more negative. It feels like such a death sentence though. I just want my daughter. I just have to wait to hear the results of the test.