JolessaC

We are followed yearly by a pulmonologist, for my son started showing symptoms of asthma around the age of 5 and we also were on oxygen for two years. Those first two years a CDH baby is at risk to catch bugs and germs so easy due to their lungs still being so fragile and not the same size as a normal child in most cases. We kept Ian pretty well isolated that first year and the second year, I didn't take him where there was a lot of people. I know that is hard to do sometimes, but a normal cold to us, affects a CDH child different. Sometimes breathing treatments help our kiddos when they get sick...have they been doing those? I will be so glad when the winter is gone and these germs go away!! Hope Alyx can stay healthy!!

My daughter was treated for respiratory infections multiple times before I was told she was not having resp infections but had reactive airway disease and asthma. We too follow up with a Pulmonologist who has her on maintenance drugs.

Are either one of these serious? How do I bring this up to her pediatrician? I'm starting to get a little worried because she's getting so many of them that its nerve wracking. I feel like when ever I say something about her having a possible problem I get shit down by her father and grandparents. I don't know how to approach them about how she is still going thru CDH and that's it's nt done. Any advice?

I have known kids with asthma and when they get sick, they have a very hard time breathing and a tough time getting over it without the help of breathing treatments. When my son was little we did breathing treatments when he had respiratory infections. We were not actually diagnosed with asthma until he was older...closer to kindergarten age. Then he started using an inhaler and is on a daily medication.

It is hard when you have family that still don't understand that Alyx is still not out of the woods yet. Do you see doctors for a CDH follow-up, sombody at the hospital where Alyx was born? If so, I would tell them your concerns and see if you can get a referral to a pulmonologist. Many of our hospitals around the US will do some sort of follow-up, many like to take an xray down the road to see what is happening in the chest cavity, especially if a patch was used. Many pediatricians are just not experienced in CDH enough to completely understand either. You could voice your concerns at the next well check-up or visit and see what the pediatrician has to say.