NatalieP

When I was 18 weeks I found out Riley had CDH. From then on out I doctored in Rochester. He was born October 29th, 2013 at 11:04am. He weighted 7lbs 12oz and was 20in long. They immediately had to put a breathing tube in and rush him to the NICU I barely even got to see him. When I visited later that night he was on a machine called the Ocillator. In the middle of the night I got a phone call...they needed to put him on ECMO because his lungs and heart weren't strong enough. On Novemeber 12 he was put on Dialysis due to his kidneys shutting down on him. November 18th he got off ECMO and had his repair. December 3rd he was able to get off Dialysis. January 8th he got his trach placed. January 21 got his GJ tube placed. March 6 he got a Nissen and now we are currently waiting for nurses to get hired...hoping to be home May 12 or 13. Riley has had a long battle with this CDH and Im so proud of him for fighting so hard. There were many long days sitting in the hospital wondering whats gonna happen next...its just one big waiting game. On the 29 of this month we will be in the hospital for 6 months. Im just thankful he is still alive.