Isabelle and Family

I have been a member on here for about 4 years now and honestly I just recently gained regular access to a computer. You will have to bare with me as I am still trying to navigate this site. It only took me 20 minutes to figure out how to post to my blog

It is coming up on 7 years since we got to meet and had to say good bye to Isabelle. She is still on our minds daily. Every year we take her a gift and the family sits in the car eating Chipotle. I am sure this sounds pretty odd but there is a story behind it. At 20 weeks we found out that Isabelle had CDH. From then on we had on average 2 appointments a week. After the appointments my husband and I would always stop by Chipotle for lunch. Boy oh boy would that girl kick, flip and flop when I ate it. So, we assumed she was loving it and have started the tradition of eating Chipotle in her memory. Her birthday is November 29 so as usual we will be found up at her grave this Saturday eating Chipotle in the freezing cold, lol.

Over the past years both my husband and I have tried being active in Cherubs. Every year we send the request to the mayor of Columbus and the Governor of Ohio for the National Day of Congenital Diaphragmatic Hernia Awareness. We, just a couple years ago, decided to try and hold a fundraiser. We decided to do a car show in hope of raising awareness and maybe a little money. We really came out in the hole but did donate two hundred dollars and some change. I hope Cherubs received the money order but I am not sure since I never heard anything. We didn't do the fundraiser last year but we do hope to do the car show again this Spring/Summer 2015. Hopefully this one will be a bit more successful

I feel a little isolated from most Cherubs parents and families. Maybe it is because I am not able to volunteer like I would like to or maybe it's because my Cherub is not here. In any case I am hoping that if I figure out this website maybe I can become a bigger part of Cherubs. I have often thought of volunteering at Children's Hospital here in Columbus but then wonder what good would I be to these parents? I mean Isabelle was only around for 2 1/2 hours, I didn't experience most of what they are. One day I will find my purpose in this group but until then I will continue to make others aware of what CDH is.