Both hyplastic left heart syndrome and cdh
by
, 05-25-2016 at 05:45 PM (4741 Views)
Yesterday I meet with the neonatologist and he told me my baby has a zero percent chance of survival after she is born. Because she has two diagnosis that work against each other. I am trying to find at least one person who has had a baby with both. So far I have been unable to find any research or anyone who knows about both conditions. the doctors are really pressuring me to make a decision now before baby is born so we can have a plan. But I want to fight but part of me feels like I should enjoy the small time we have with her and not put her through all the pain and suffering that may eventually end her life to. I am so torn because I love my baby so much but I don't know if I can make her suffer seeing all the facts in front of me. Please somebody give me some advice. I have less then 7 weeks to go and I have no clue which way I should decide.