Severe Left CDH+ Pulmonary Hypertension
by
, 08-03-2016 at 07:40 PM (5057 Views)
My name is Morgan Nuchols, I was born July 26th,1993. Had a undetected Severe form of Left Congenital Diaphragmatic Hernia, born 2 weeks early, mom's water leaked for 3 days until I was born at Torrance Hospital. After I was born, turned blue couldn't breath, was helicoptered to Huntington Hospital that was the closest that had a ECMO machine. Was on that for a week until first diaphragm hole got fixed. Had 0 diaphragm muscle and 1/4 left lung size, at 3 months old they repeated that operation. As I aged it got repaired, by age 8 was first diagnosed with Pulmonary Hypertension. Always had oxygen tubing off and on. By age 12 my spine was curving to left side, 2 rods and 15 screws where placed. A year after in 2007 got intestines repair and my last diaphragm hole repaired. Graduated 8th grade. Graduated High School in 2012. Soon will be starting 3rd PH medication. I'm very happy to find other patients like me, and there parents.
Love, Morgan Nuchols