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My Little CDH Angels Story

My Sweet Angel Baby Boy

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by
MiriamM
, 06-13-2019 at 06:58 PM (25870 Views)
This will be the very first post I do here. My son was born with sever RCDH. He was born with hardly any lung tissue. He was placed on ECMO for two weeks. It was the most horrible thing that i had to see my only child go through right after birth. He had his repair surgery while one ECMO and every thing came out good. During his stay at the hospital he was having his good days and extremely bad days. Every day it would be a different thing. Unfortunately do to his sever RCDH he developed Pulmonary Hypertension. He was on the hospital for 6 months of his life. Due to PH he had to be put on paralytics to see if he would get better. Unfortunately September 24th, 2018 my son passed away. He was such a strong, loving, happy and just beautiful baby boy ever. We Love and Miss You So Much My Sweet Baby Boy
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  1. MonicaWarren's Avatar
    Hi Miriam,

    I was browsing through the CDH site and I came across your post and felt the need to reach out to you. I am not sure why other than to ask how you are doing with things and coming up on the one year anniversary of the passing of your son? I am sorry you had to go through that and always know you have support. My youngest son was also born with CDH and it runs in both sides of our family. It is a very hard thing to deal with. I hope things are looking up for you.
  2. MaraG's Avatar
    I am so sorry to hear this. I was put in the same situation just recently except the hospital my son Emmanuel was in didn't want to offer ECMO. My son was also born with RCDH, but he passed away shorty before his 3 months on earth. God bless our angels in heaven. Prayers!