Matt came across this

Matt's addicted to the news blurbs he gets on his phone and found this article.

Subject: St. Louis hospital to study birth defect

Sent from Express News
ST. LOUIS - A top children's hospital wants to improve the survival rate of
infants born with a birth defect that many families have never heard of
until their child is diagnosed.

Dr. Brad Warner, surgeon-in-chief of St. Louis Children's Hospital, said
Tuesday that he and others plan research to better understand the condition,
known as CDH, or Congenital Diaphragmatic Hernia. One in 2,000 babies is
diagnosed with the disease, doctors say. Half of those don't live to their
first birthday.

The condition occurs when the diaphragm, which separates the chest cavity
from the abdomen, does not completely form in the womb. The contents of the
belly migrate to the chest, which keeps the lungs from developing properly.

Eight babies at the St. Louis hospital died last year from the condition.

Doctors at St. Louis Children's Hospital say they're part of a national
database registry to collect and track information on children with the
condition. They plan to recruit faculty candidates that are able to explore
fetal surgery intervention and are working to collect DNA for analysis.

Treatment for the birth defect varies.

Many are stillborn. Babies who die from the birth defect usually have
insufficient lung tissue to survive, or develop hypertension in the blood
vessels of the lungs. Medications to lower blood pressure in the lungs lower
the baby's overall blood pressure, which can be problematic.

Of those who live, some are in distress from the moment the umbilical cord
is clamped; others are OK for their initial hours of life, then get worse. A
third group, which is the most uncommon, initially looks good, but later
exhibits signs, such as bowel sounds in the chest, that reveal the
condition.

In some cases, doctors have performed surgery on pregnant women and their
fetuses to try to address problems before a baby is born, but those
procedures have risks. Children with CDH can grow up to be healthy adults.

Doctors say they hope to better understand predictors of good and bad
outcomes for babies with the condition, as well as how to address the many
complications that can arise.

----



By BETSY TAYLOR Associated Press Writer

One of Grayton's doctors, Jackie Saito, is now at Children's Hospital of St. Louis.

Very interesting article....thanks for sharing!

Thanks for sharing that Chris!! That is a very interesting atricle!

Dr. Warner is AWESOME!! He originally was at Cincinnati Children's.

I saw the news coverage of this conference. I have the link if any of you would like to watch it. This was done in relations to CDH Awareness day (BOH March 31st) and the BOH foundation donating $16,000 to research at the St. Louis Children's Hospital for CDH research.

It was donations from 2 or 3 families to the hospital - I don't know why they went through BoH and didn't just donate directly to the hospital? So technically, BoH didn't donate but it was used to promote their trademarked CDH awareness day. And I'll keep my personal opinions to myself. ;)

It is great CDH Research is being done and Dr. Warner is wonderful and God bless those families who donated!!!!!!!!

I noticed on the check they listed the 3 families in the corner of the check and think that is wonderful they were able to raise that much money to be donated to CDH research!! There needs to be more research done on CDH. They should have given those 3 families more recognition in that TV/video conference I watched though. I side with you too Dawn and will keep my personal opinions to myself.

Thanks for sharing.

Dr. Warner is a great doctor. He was of the head surgeon at Children's when we were there with Chase. He is a very nice person as well as a great doctor.