We are trying to decide if we want to stop and see friends on the way down, plus I was goign to try and stop to see Kate and pick up her basket. So I am not sure on our route yet. Though a CHERUBS train would be very entertaining!!!
We are trying to decide if we want to stop and see friends on the way down, plus I was goign to try and stop to see Kate and pick up her basket. So I am not sure on our route yet. Though a CHERUBS train would be very entertaining!!!
Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>
Yes- a CHERUBS train would be very entertaining!!!!!!!
I think that is great that you are going to try and see Kate.
Kara-are you staying in the hotel? or after activities are over, will you go back to your sisters?
I think that is great your Mom is coming with you. I wish my Mom could come with us--but she will be keeping the oldest three--we are thinking. We just haven't made up our minds yet. The whole issue with babysitting--we are bringing a friend's daughter to help with Shelby--but with four. It may be over whelming and I think they have High School Musical Camp or Hello Kitty dance camp that week????Need to look at my calender.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
If we werent off the beaten path yall could stop off here !!!
WHAT is the ITTY BITTY BLUE VAN? i'm lost
No to the angel ball, I am awful, I know it!
Steph, you know how I hate dressing up~
LOL
KARA .. where do you guys stay at Myrtle beach
We usually go every year but we arent going this year Planning for next year & hopefully to go 2 times
LOVE broadway at the beach & MARGARITAVILLE
KARA .. where do you guys stay at Myrtle beach
We usually go every year but we arent going this year Planning for next year & hopefully to go 2 times
LOVE broadway at the beach & MARGARITAVILLE
Stephanie, we are definately staying Thursday night at the hotel and I did book it for Friday night, too, but chances are we will cancel that. I wanted to go ahead and book it for that night in case we do want it. I get to see my sister once every 2 years if I'm lucky, so we want to try and spend as much time with them as we can. Since we will be leaving Sunday, we were thinking that Saturday we would spend all day with them. My sister can go with me to get my hair done for the ball and such.
Steph, oh no! No kids except Shelby at the conference! Eeks, I assumed you were bringing the whole gang and have Aaron totally excited about playing with your girls while mommy and daddy are in the conference.
Penny, we are staying at Marriott Oceanwatch Villas at Grande Dunes.
Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.
FUN !!
Enjoy Myrtle beach ..!
Can't wait to see all of you guys in person !!!
Dr Phil should do a show and "unite" all of us there HAAAAAAAAAAAAA
it would be more squeeling & huggin than he's ever seen
LOL, Penny, would be great CDH Awareness too!
Penny... sign up for the conference committee please!
CHERUBS train... oh that sounds so great! For those of you driving, I highly recommend spending some time in the mountains if you can, it's gorgeous there. Or the coast (Outter Banks) too if you come down the East Coast. NC is the most beautiful state (I'm obviously biased), Raleigh and Durham is not the prettiest area though... it's ok, but by far not the most beautiful NC has to offer.
If you haven't registered for the conference, please don't forget to do so! We need to get a head count.
Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.
Founder and President of CDH International.
Executive Director of:
CDH International USA
CDH International UK
CDH International Canada
CDH International Switzerland
CDH International Netherlands
CDH International Singapore
CDH International Hong Kong
Messages may be answered by CDHi Team.
DAWN Where/how do i sign up for conference committee ???
Make sure that you guys take lots of pics for those of us that won't be able to attend!!
Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg