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Kate the video is absolutely beautiful, breathtaking. I am so honored that you put Ethans picture in. Its funny because when I see things that he is in, or write in a journal, or make a garden for him, any thing to remember him by, It truly helps me. Sometimes I feel like I am in a bubble and it didn't really happen. But these little things remind me of the 23 precious blessing I had with him. Sorry I went off on a tangent, but Thank you for adding another blessing.
Lynette and Keith Moloney Parents to : Ethan James(23 days) twin with LCDH-Our Snuggle Puppy Jack Walter - 3 yrs. old Luke James - 6 months old Ethans site: www.caringbridge.org/visit/twinbmoloney Ethans book on Shutterfly: http://community.shutterfly.com/gall...t2jFwwYgPmj3sO My space: www.myspace.com /Lynette Moloney
Kate-
The video is wonderful! It of course brought tears to my eyes.
CDH is such a horrible birth defect and to be able to get the well needed awareness out there---IS SO SO SO VERY WORTH IT.
Thank you for taking the time to do this Kate.
This e-mail video will get to SO many---CDH Awareness will get out there.
One person at a time.
Just such a great feeling to know that we ALL will get it out there TOGETHER!!
Group hug.
Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
Oh poopers, I didn't see and comprehend this topic till tonight. I missed out : ( Wish I would have seen it so I could have gotten Adam's pic into you. Kate you did a grand job.
Kara- mom to Aaron (8-30-03) and Adam- LCDH (8-7-06). Gastric Volvulus at 7 months old; Borderline Chiari Malformation; reherniation- bowel blockage and intestional malrotation at 26 months old; Apraxia of Speech - neurological speech disorder; Auditory Processing Disorder; Asthma; and frequent headaches.
Kate- I feel so honored to have Alex in the video. Thank you for sending the email, but I'm not getting the video with it. Help!
Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg
I am so sorry, I was having problems getting on here and my email. I don't know why but it sent the link to some people and did not for others?? I am going to resend it to everyone, so if you already got the e-mail and it worked, just erase it!! I know my e-mail blocked the picture of the ribbon and I had to enable links for the message? Maybe see if your email is doing something nutty like that when you get it?
Kara - did you want me to e-mail it to you?? I am keeping a copy of it, so whoever wants the e-mail I will send it to.
Corin, did you get yours? I think I emailed it from my home address yesterday?
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Okay I resent it from my home e-mail KTJ24@aol.com. Maybe that will do something different . . . . . keep your fingers crossed!!
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
Thanks Kate-I got it.
Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg
I got it Kate and forwarded it on! It looks great!
Corin New England State Rep [img]http://i171.photobucket.com/albums/u312/GabrielMommy1118/1-3.jpg[/img] [url]www.gabriel-nava.virtual-memorials.com[/url] Gabriels website [url]http://www.youtube.com/watch?v=N66S-vt5sI8[/url] Gabriels Video [url]http://corinscrazylife.blogspot.com/[/url] My Blog [url]http://newenglandcherubs.wordpress.com[/url] New England Blog
That's great, I am happy it worked for you all and glad you liked it!!
Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
I missed it, too! I'm usually all over these things!Originally Posted by karahess
Its great, Kate! I'm sending it out now!
Ohio Co-Rep/Indiana Rep Mother to Jeremiah Isaac Deskins 9/21/2007-1/12/2008 Left Sided Agenesis Type CDH. NICU 3 months- Home 22 days. 1 repair- nissen- gtube- wound vac & graft- enlarged liver- kidney reflux due to malformation of kidney valves-narrowed aorta- malformation of right pulmonary vessels and of course- the ever present hypoplastic left lung. http://www.jeremiah-deskins.virtual-memorials.com http://heavenly-angels.org/graphics/...ingmyangel.gif http://lilypie.com/pic/2009/10/29/V8wd.jpghttp://lagf.lilypie.com/tQNem4.png http://lbdm.lilypie.com/ucO7m4.png
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