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Thread: NC 14 News

  1. #11
    Wohooo
    go Dawn
    i know this week is going to be CRAZY !!

  2. #12
    I couldn't watch the video
    Fer Mom to Ana (29-11-2001) Mom to Juan Pablo (1-6-2007) born with a right sided diaphragm eventration- a rare type of CDH- severe reflux and speech delayed with signs of autism Juan Pablo- a Tribute to Life at http://es.youtube.com/watch?v=DYQAqMoTaiQ Our family blog at www.arcephoto.blogspot.com (if you want to visit- email me at maferarceamare@gmail.com so I can send you an invite)

  3. #13
    Dawn

    I just watched the video and is was really good. You did a great job in increasing CDH awareness!

    Thankyou
    Maryanne (mum to Rebecca born 11/11/02 with LCDH)

  4. #14
    i wanna see it!
    i will watch it when i go to the library tomorrow and get on something other than DIAL UP !

  5. #15
    Dawn-
    I just watched to video and I think you will love it.
    It will be perfect for the table.
    I have my laptop with me--do not mind if it needs to be used!!!
    Let me know.
    We are on the road and will be there tomorrow.
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]

  6. #16
    I think it was great. Corin has great ideas too, love the idea about a collage. It was hard to hear you in the video Dawn! Speak up
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  7. #17
    I've been hearing that my whole life, Amy! lol. What can I say? I'm just soft-spoken. I took a few college classes on Public Speaking, just for CHERUBS (I took a whole lot of classes for CHERUBS; Medical Terminology 1 , 2 and 3, most of my computer classes were taken initially for CHERUBS, Public Speaking, Professional Development, Psychology, etc - too bad they don't have a degree for running on-line medical support groups! lol). I barely passed that class, I couldn't speak loud enough! Craig says when I get upset I squeak like a mouse instead of screaming. Yeah, I'm pretty ferocious. LOL.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.

  8. #18
    LOL
    Amy Miles Faith Grace Miles Born 3-6-08- she lost her battle with CDH on 4-5-08 due to complications with deficiencies in blood clotting factors- albumin leakage from silo- pnuemothorax- and PPHN. LCDH- stomach- bowels- and liver/gallbladder up and gortex repair http://i304.photobucket.com/albums/n...Gracesmall.jpg www.carepages.com (search for FaithGraceCDH) www.firstgiving.com/faithgracecdh __________________________________________________ _____________ A gift from Heaven due on July 4th- 2009... http://bd.lilypie.com/pABbm5.png <a><img></a>

  9. #19
    Dawn - I think you did a wonderful job! The interview was great and you are soooo attractive!!

    I can only try to understand what you are saying about not wanting it to be just about Shane but I think people such as reporters really have no idea what groups such as CHERUBS mean until they have had a sick child or lost a child as so many of us have. I guess they try understand it as best they can and the 'easiest' way is to draw on your personal experience for the story. You did GREAT and it bought tears to my eyes seeing little Shane on video again! He is so beautiful!

    Have a wonderful time this weekend and we can't wait to see video and photos!!!!
    Danielle - Lily's mum. Lily 31.07.07- Diagnosed at Birth - LCDH- Repair: 13 hours old- Ventilator: 5 days- NG tube: 7 days- Hospital: 16 days. Also mum to Ethan 21/06/05 http://i256.photobucket.com/albums/h...nLilysmall.jpg

  10. #20
    Senior Member
    Join Date
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    Wonderful video Dawn - and you are so softly spoken. I was talking to my SIL about it and said from watching that you would have no idea that such a quite gentle lady could achieve even half of what you have!

    I understand what you mean about wanting interviews to be about CHERUBS and not Shane but the reality is that people are interested in other people and a reporter has to give their audience what they want. As long as you can get CHERUBS into any interviews let it be about Shane - it's a means to an end I guess. You have to think about it from another perspective. When I found CHERUBS the thing that made me want to join was not all the wonderful research and information that was available - it was that there were other real people who knew what I was going through. It was also reading your story about how you started - two members, a type writer, $100 (I think?) and your kitchen table. It was reading about how you named it for Preston. It was all that personal stuff that made me want to join.

    I like Corin's suggestion also but to get the word out there, we all have to offer up our personal stories. I think that is just the way it is.

    And if anyone ever thought you were all about yourself......well, they have NO idea. The amount of hours you put in, the tears, the stress, the heartache and the headaches. We know the situation so never worry about that!

    Hope you all have the BEST time this weekend and I can't wait to hear all about it and see all the photos. Fingers crossed some of us Aussies can be there next year???!!!
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth

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