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Thread: ACDHO - Alliance of CDH Organizations

  1. 11-21-2008, 09:43 PM #1
    Dawn Torrence Ireland
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    ACDHO - Alliance of CDH Organizations



    http://health.groups.yahoo.com/group/acdho/

    CHERUBS is extremely proud to be a member of ACDHO (Alliance of Congenital Diaphragmatic Hernia Organizations), CDH organizations and foundations working together to help families affected by Congenital Diaphragmatic Hernia. All 8 of CDH organizations who banned together against the CDH Awareness Trademark, plus several CDH hospitals and other groups. We all share 1 common goal - to help CDH families and to work together as a CDH community!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
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  2. 11-21-2008, 11:12 PM #2
    MelissaKelly
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    Very, very cool.
    ~Mel Mother of Michael: RCDH- ECMO (11 days)- cranial evacuation- VP shunt- hernia repair- g-tube- Nissen fundoplication- pyloroplasty- ASD and VSD closures- tracheostomy- hypospadias repair- pulmonary hypertension...but what he lacks in lung capacity he more than makes up with charisma!
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  3. 11-21-2008, 11:29 PM #3
    Damon andSharonknott
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    WOW...nice one
    Sharon - mum to Liam - 30/04/03 RCDH- 2 CDH repairs- Vent: 22 days- oxygen: 315 days- ectopic right kidney- NG Tube: 3 years & 7 months Chelsea-Rose - 08/03/99 Co-Rep for Australia - sknott@cherubs-cdh.org http://i281.photobucket.com/albums/k...nLiamsmall.jpg
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  4. 11-22-2008, 05:18 AM #4
    Nikki Haye
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    Nice! I like the logo too it reminds me a bit of the black bracelet
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  5. 11-22-2008, 07:52 AM #5
    Donna Easley
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    Awesome!
    Donna Easley mother of Alexander born 9-28-06 with RCDH ECMO 9 days- ASD- chronic lung disease- pulmonary hypertension- tracheomalacia- reflux- nissen- g-tube- trach and home vent since 6/2007 overall a happy and rotten 2 year old and little brother to Walker (5) http://www.totsites.com/tot/alexeasley http://webpages.charter.net/jtejctn/cdhsmall.jpeg
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  6. 11-22-2008, 09:57 AM #6
    KimberlySwitzer
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    very cool!!
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
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  7. 11-24-2008, 04:31 PM #7
    KateC
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    Love it Dawn
    Mommy to Shannon Elizabeth (01/16/07-01/19/07 LCDH and HLHS) Peanut Shelbe (miscarried 9/23/07 @ 8 weeks- due 4/10/08 ) Gracie Kathleen & Lily Anne (8/28/08 Blessings from their big sisters!) Shannon's Website! [url]www.shannonelizabeth.virtual-memorials.com[/url]
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  8. 11-25-2008, 04:39 PM #8
    PennyCampsey
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    LOVE IT
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  9. 11-26-2008, 03:54 AM #9
    JaanaRosenlund
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    Fantastic! love it!
    Jaana - mum to Gabriel and his big sister Shaddel Liisa. Diagnosed 19 weeks in utero with LCDH. Polyhydramnios. Surgery day 3 - collagen patch. 8 days vent and 3 days oxygen. 6 days NG Tube. Home after 13 days. Additional surgery at 7 weeks for bowel obstruction - reflux settled. VSD closed naturally and no problems with lungs. http://i316.photobucket.com/albums/m...abKiasmall.jpg
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  10. 11-26-2008, 11:18 PM #10
    StephanieOlivarez
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    WONDERFUL!!!!!!!!
    Stephanie (Shelby's Mom LCDH 7-10-06)- ECMO 7 days- 2 DH repairs- hital hernia repair- Cliff Lip repair- Nissen and Mickey button. Shelby is eating and drinking by mouth now!!! THIS IS FANTASTIC!!!!! Mom to Lexi 8- Morgan 6 and Taylor 5. Blessed to have our little butterfly and our beautiful girls. [url]www.youtube.com/cdhsupport[/url] - Shelby's Journey [img]http://i258.photobucket.com/albums/hh257/gracebutterfly/CDHAwarenessRibbonShelbysmall.jpg[/img]
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