Stay Connected

Page 1 of 2 1 2 LastLast
Results 1 to 10 of 18

Thread: "I Own Congenital Diaphragmatic Hernia Awareness"

  1. 03-18-2009, 12:56 AM #1
    Dawn Torrence Ireland
    Dawn Torrence Ireland is offline
    Administrator Dawn Torrence Ireland's Avatar
    Join Date
    Jun 2007
    Posts
    4,087
    Blog Entries
    59

    "I Own Congenital Diaphragmatic Hernia Awareness"

    http://www.youtube.com/watch?v=U4Unz-z4um4

    We used all the photos in our 2 main albums plus others that I found from ribbon requests and family photos. Some cherubs might be in more than 1 photo because I wanted to make sure everyone was in and couldn't go through 100's of photos. We had 22 videos submitted! My narration is a little shaky but hopefully it educated a few about CDH.

    Feel free to post this video to family, friends, sites, blogs, myspace, facebook or wherever you want. Hopefully this video will convince BoH's board to drop the trademark - but if not, at the least, we can use it to raise a ton of awareness!
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
    Reply With Quote Reply With Quote
  2. 03-18-2009, 01:42 AM #2
    DanielleKessner
    DanielleKessner is offline
    Senior Member
    Join Date
    Jun 2007
    Posts
    907
    Blog Entries
    1
    Link didn't work
    Danielle- mum of Alyssa 21-22/05/92 L-CDH diagnosed at birth
    Reply With Quote Reply With Quote
  3. 03-18-2009, 07:49 AM #3
    Dawn Torrence Ireland
    Dawn Torrence Ireland is offline
    Administrator Dawn Torrence Ireland's Avatar
    Join Date
    Jun 2007
    Posts
    4,087
    Blog Entries
    59
    It should now. Sorry about that, I thought it had been approved already. Is it now.
    Mom of Shane (1/28/93-9/11/99) LCDH x6 and multiple complications and birth defects.

    Founder and President of CDH International.

    Executive Director of:

    CDH International USA
    CDH International UK
    CDH International Canada
    CDH International Switzerland
    CDH International Netherlands
    CDH International Singapore
    CDH International Hong Kong

    Messages may be answered by CDHi Team.
    Reply With Quote Reply With Quote
  4. 03-18-2009, 07:55 AM #4
    SCURTIS
    SCURTIS is offline
    Senior Member SCURTIS's Avatar
    Join Date
    Oct 2007
    Posts
    333
    Great job Dawn!
    Shauna Curtis - Mom to Addisen Noel born 12/10/2003 with LCDH diagnosed at birth- 5 1/2 weeks in NICU- 70 days with NG Tube- Cleft Lip & Palate- Horseshoe Kidney. Also Mom to: Mitch 08/17/2006 Luke 12/11/2008
    Reply With Quote Reply With Quote
  5. 03-18-2009, 07:59 AM #5
    LynneB
    LynneB is offline
    Senior Member LynneB's Avatar
    Join Date
    Mar 2008
    Posts
    1,920
    Great job Dawn! I love it. It really puts the personal aspect on the issue. Hopefully the powers that be can see real people and not just a peice of paper. A big ATTA GIRL to Dawn!
    cdh found at birth. 28 days NICU. Vent 7 days. Repair at 3 days. No ECMO. NG Tube 28 days http://i319.photobucket.com/albums/m...don/0004-1.jpg
    Reply With Quote Reply With Quote
  6. 03-18-2009, 08:00 AM #6
    DonnaChurcher
    DonnaChurcher is offline
    Member DonnaChurcher's Avatar
    Join Date
    Jan 2009
    Posts
    64
    Just watched it and loved it very good. x
    Our little miracle born at 35 weeks with unknown CDH right side - repaired after 69 days with a patch! Lots of other issues to go with it and still undiagnosed- but very gorgeous.
    Reply With Quote Reply With Quote
  7. 03-18-2009, 09:00 AM #7
    KimberlySwitzer
    KimberlySwitzer is offline
    Senior Member KimberlySwitzer's Avatar
    Join Date
    Sep 2007
    Posts
    737
    Great job, im off to post it everywhere now!!
    Mommy to Haylee 01/26/2004 and My cherub Asher 07/04/2007- LCDH discovered at 18 weeks- medical termination at 24 weeks. Hypoplastic left lung and right jaw- pulmonary hypertension- Secundum type ASD- left liver lobe- stomach- appendix- and small bowel herniated www.freewebs.com/babyasher Ashers webpage http://www.youtube.com/watch?v=dxS8F4dkHjE Ashers video montage
    Reply With Quote Reply With Quote
  8. 03-18-2009, 10:36 AM #8
    Chris and TracyMeats
    Chris and TracyMeats is offline
    Administrator Chris and TracyMeats's Avatar
    Join Date
    Sep 2007
    Posts
    6,814
    Great job!!
    Tracy - mom to Ian, LCDH diagnosed at birth, 4/3/04. Ian was born at 36 weeks, spent 53 1/2 days in NICU, 7 days on ECMO, surgery was on day 5, 29 days on a vent, 23 days was an oscillating vent, 546 days on oxygen. Inguinal right and left hernias and undescended left testicle surgeries were done on day 48. Currently has heart related medical issues and exercise induced asthma, but is one happy, happy boy!! Also mom to Cole - 13, Shane - 9, and Toby - 4. CHERUBS Parent Advisory Board Member and Co-Chair, Volunteer Co-Coordinator, and Wyoming State Representative.
    email: tmeats@cherubs-cdh.org
    Reply With Quote Reply With Quote
  9. 03-18-2009, 01:39 PM #9
    Libbie and DeanMiller
    Libbie and DeanMiller is offline
    Junior Member
    Join Date
    Jun 2007
    Posts
    16
    Oh Dawn....you did a terrific job putting this all together. This video brought me to my knees. Thank you for everything you do everyday to support each and every CDH family.

    Libbie Miller
    Mom to Megan Rene 12-13-99/12-15/99 LCDH
    Reply With Quote Reply With Quote
  10. 03-18-2009, 02:46 PM #10
    Elaine Moats
    Elaine Moats is offline
    Senior Member
    Join Date
    Jun 2007
    Posts
    127
    Great job
    Elaine- mom to Kristin 22- LCDH- nissen- ASD- oxygen till 2 1/2- g-tube till 4 1/2- bowel obstruction at 14 yrs old- only one lung. Also mom to Brittany 18- no CDH just 2 mths premie.
    Reply With Quote Reply With Quote
« Previous Thread | Next Thread »

Similar Threads

  1. "National Congenital Diaphragmatic Hernia Awareness Day
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 0
    Last Post: 06-25-2009, 04:08 PM
  2. Can You Say "Diaphragmatic Hernia"?
    By karahess in forum Support for Surviving Cherubs & Families
    Replies: 12
    Last Post: 01-22-2009, 01:39 PM
  3. Congenital Diaphragmatic Hernia Awareness Trademark
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 0
    Last Post: 01-06-2009, 12:25 PM
  4. "Congenital Diaphragmatic Hernia Awareness Day"
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 0
    Last Post: 12-07-2008, 01:15 PM
  5. "Congenital Diaphragmatic Hernia Awareness" Tradem
    By Dawn Torrence Ireland in forum News & Media (Public)
    Replies: 0
    Last Post: 08-18-2008, 12:46 PM

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •  

Forum Rules