OK, add me, my husband David, and 3 kids- Michael, Bethany, and Christopher "Chris" and my mother Lynnette will be in attendance at the conference as well.
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OK, add me, my husband David, and 3 kids- Michael, Bethany, and Christopher "Chris" and my mother Lynnette will be in attendance at the conference as well.
Diagnosed at 3 1/2 years old- My son had always been a healthy- active toddler til 3 days before diagnosis. In 2/09- he was in a ER being treated for stomach flu. X-rays revealed his intestines were in his chest & colon stuck inside the hole in his diaphragm. He was showing signs of shock. We were devastated! He was wheeled away for surgery in the night. NG tube 5 days- Oxygen 3 days. We have NO idea how long he was this way but he likely had a hole in his diaphragm at birth- and his intestines- colon migrated up. He also has a large hole in his heart- 17mm-20mm. Diagnosed with ASD (Atrial Septal Defect) & will undergo Open Heart Surgery. I would love to speak to any other families of toddlers diagnosed with CDH or with anyone whose child is/has undergone a heart procedure.
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